Diagnosed with MS, Lupus and now Fibromyalgia

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TAS-MS/lupy
New Member


Date Joined Dec 2016
Total Posts : 8
   Posted 2/24/2017 9:54 PM (GMT -6)   
I am new to this site so here goes: In 1993 I was diagnosed with MS. I was only 20 years old at the time and decided against doctors advice to not go on any meds. I felt my symptoms were not bad enough at that time to subject myself to liver or kidney problems due to the meds. Over the last 20+years I learned to live with and deal with my MS. I was a very energetic(I had my days however, esp in the summer)hard working, self motivated person who just like to go,go,go and "raise the bar" at my job as high as I could. No one could believe someone with MS(mine very mild) could be that strong, have that much energy and work in such a fast past factory! That is until summer of 2013 when all that started to change. That summer I was hit with a huge amount of pressure and stress due to some life changes and almost worked myself to death! During that time I was getting new & different symptoms daily. I realized a lot of the symptoms were my MS but I also knew something else was wrong! A long story shortened, after weekly trips to different doctors because all they wanted to do was say it was my MS in Feb 2016 I tested as they told me "antibody" positive for Lupus!!!After that diagnosis and some new meds things for me continued to get worse. Currently, a shell of the person I once was, I had to take a medical leave from work, I can hardly get out of bed without tears from the aches and pains let alone go to work. On Feb 15th I was told my Lupus was quiet and that I have Fibromyalgia!! HELP, where do I go from here?? In May I will lose my job of over 15 years if I do not return to work!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 2/25/2017 2:34 PM (GMT -6)   
I'm so sorry you're dealing with this. Since you are unable to work, you need to look into filing for disability. Talk to your employer first. They may be able to assist you. However, you may need to hire and attorney in order to be successful.

Hang in there. Things may change for the better. Be sure to post on the lupus and Fibro boards here. They can also offer suggestions.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2498
   Posted 3/30/2017 8:16 AM (GMT -6)   
Please test for lyme disease as well. Testing is often poor and may turn up a false negative. Demand a mandatory western blot, at least. It is not uncommon for someone with lyme to have a positive ANA or fibro diagnosis.

TAS-MS/lupy
New Member


Date Joined Dec 2016
Total Posts : 8
   Posted 4/9/2017 12:08 AM (GMT -6)   
Thank you for your suggestion. I know I was tested at least twice for lyme over the last 4 years but not sure if it was a western blot
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