My son-n-law, 38, was recently admitted to a nursing home for skilled nursing care after being diagnosed with PML caused by the his MS meds. He lost the use of one leg, general all over muscle weakness, loss the ability to swallow, has trouble speaking, lost some of his vision (we can't tell how much because he can't communicate) and may have lost some of his mental abilities. He also has a PEG tube.
Due to the level of care needed, only one skilled nursing facility in the entire area would accept him and they are pretty low rated. The main reason to have him there was the hope for daily rehab that could be done in bits and pieces based on his his lagging energy levels.
The low level care is taking a toll with rashes and the start of bed sores after two weeks. The rehab, on the other hand, is helping as we're able to understand a few more words here and there.
Does anyone have any advice on how to handle the nursing home staff so that we can try to get better care for him? He is incontinent and sits in his own waste sometimes for an hour or more. We really want him to have the rehab but are considering bringing him back home. Daughter is very worried about taking care of him as she is the only one at home and has to work and would have to rely on home health and rehab care. It's a very stressful situation so if anyone has any ideas we would appreciate it.