Posted 5/26/2017 6:25 AM (GMT -7)
I'm new to this listing but am also wondering if what I have is MS. 6 yrs. ago I began on this journey of a strange neurological illness. It began with sev. months of dizziness and nausea which then proceeded to head and eye pain, bouts of ataxia, extreme pain (like constricting bands around chest and back, which I'm now experiencing), periodic hoarseness/husky voice, esophagus "swelling"/constriction and inability to swallow, periodic problems with inability to take a breath (diaphragm involved), muscle spasms, brain fog, problems with slow processing of info, problems with word recall, etc. Neurologist did lots of tests and MRI of brain and one of spine in 2012. MRI's showed some lesions in brain (not MS, he said) but none in spine. Was sent to rheumatologist, ENT, etc. Testing showed I do have Meniere's Disease and also migraines (which may be cause of lesions). Have fibromyalgia and arthritis plus degenerative disc disease, probably due to severe car accident 28 yrs. ago. I was later sent to an integrative dr. who did his own testing and found that I had a mercury toxicity, chemical toxicities, and Epstein Barr virus, 2 chronic pneumonia bacterial infections, and a chronic strep infection also affecting my health. In other testing (SRT for allergies), 2 of the Lyme/lyme asso. bacteria also showed up. The ataxia can get to be extreme. Usually I just look like I'm a "happy drunk" walking; I actually can't walk forward like normal. But, it can get severe and my legs will "go out" and can't hold me up. It can last for days, weeks, or months. Oftentimes it's then followed by extreme all over stiffness, which makes it very difficult to move at all. Had a flare of the ataxia and head/eye pain with brain fog from Oct. to Dec. Then had 3 months without it but with more minor complaints. Ataxia flare began again in April and just ended. Now this constricting band around my back and chest. Also, hoarseness/huskiness. The integrative doc says it may well be MS (even tho the neurol. said not) or Lyme or a combination of things. His testing discovered that I have a gene mutation that makes it very difficult for me to get rid of toxins, which of course complicates things. But, he also said that no matter what it is (whether MS or these infections/toxicities that have "gone to my brain"), he'd still treat it the same way. There are months when I'm pretty much housebound. Others when I use the walker, rarer times when I need the wheelchair, and times when I can navigate on my own and even go for walks. I'm getting really frustrated by it all. As the integ. doc says, we've made progress but need a breakthrough. Do these many symptoms sound like MS?