Hello, I'm here from the lyme forum....ran out of ideas. Both lyme and MS diagnosis / treatment seem to have their non-concrete variations. This drives me crazy LOL.There seems to be some technically sound advice here along with
open minds. Very much like the lyme forum (good) and certainly not like some of the other forums - why I posted the below questions:.
1)******What are the best methods to figure out if muscle stiffness is from nuero issues (wrong signals) or poor circulation?******
I had tremendous whole body stiffness and tremors when I moved for years. It was really bad in the AM, got better late in the day. Most "lyme peoples" technicality ends by saying treat the infection and you will be fine. However there is the underlying, somewhat unsupported idea that lyme causes some permanent damage, as some never get 100% better even after long term antibiotic use.
So lyme Drs have no answered to this. Conventional Drs I met dont put in much effort, some are pathetic in their lack of detective abilities.
Anyway, if you tell your "average" Nuero that you have or had lyme, chances are they will laugh you out of the clinic. Its pretty sad, and best not to mention it. So far they just looked at physical reflexes and feeling on the bottoms of my feet - then say , you dont have MS, and thats the end. One said I have "stiff person syndrome", like that helped.
I had a brain MRI run through the NueroQuant software from a Functional MD. This is primarily a mold detector (it can get in your brain), but looks for other abnormalities too- I had none, all was well. But that would be their "opinion" from their software.
2)***I'm assuming Nueros who are MS specialists might know other nuero issues that cause stiff muscles?***
I have to do extremely deep and high pressure massage to get my muscles to soften- that is "pressured", UN-natural circulation. I do this repeatedly. After years some areas are better.
The above is where I'm thinking this could be a circulation issue too, - I might go to a different forum for that question...........
Was athletic in my past, still am but not as much (after I losen up my muscles), - I understand fitness very well. Have gone to MANY PT's and athletic mined chiros with no permanent solutions other that repeated deep pressure for what seems to eterity. It helps a lot, I'm now stronger, but not completely. I've thoughly studdied and practiced healthy clean eating too- and understand it well. I get stiff from keyboarding, standing ect and need to sit and just relax to losen up thoughout the day - this effects employment options.
Note: I had many lyme symptoms, problem is they overlap with so many other causes that are also tough to prove. My killer "T" cells remain low which can be a sign of infection. T cells are not understood much. Lyme kills them, HIV'er have less, I was tested and neg on HIV just to be sure. There are no awesome lyme tests. I had the bullseye 25 years ago, with lots of tick history as an outdoors man.
Please excuse the lengthy post, I figured some history will make it clearer. I function, not enough for many jobs though. Doctors dont take you seriously if your able to function (from "outside" visual observations). I have been asked about
this by employers who noticed and fired/layed off in the past to- from my uncontrollable symptoms. I barely functioned for a year and my thoughts are with those who are here and face this daily.
I did go to a Dr who knows "born with" muscular diseases (it was a children's clinic), I was gene tested thoroughly for many muscle diseases (the dystrophies and mito diseases)- so those are ruled out (there are many).
thanks for any testing ideas or advise - I'm just reaching out using all resources, life is short, you fully realize this in your 50's LOL.
Post Edited (astroman) : 9/12/2017 11:25:57 AM (GMT-6)