Posted 10/13/2017 8:44 PM (GMT -6)
Yes, I will be. Right now we are exploring my options covered by my terrible high deductible insurance. For now, I am taking high dose d3, lions mane mushroom, baclofen, steroids, and turmeric for pain/inflammation.
My insurance only pays for generics. Anything else is $$$$$$. I am going back to doc in a few months, and plan to have info from insurance about what they will pay for so that we can work out a better treatment plan. For now, my "mix" works most of the time. But during bad flares, all bets are off it's a juggling act to try to cobble together relief. I am researching specifically about drugs for fatigue. Mine is terrible because I live in the South. I will likely also need something for the foot drop as well at some point, as it's really severe.
I am not upset that I have MS. This has been a journey and I am a bit angry that I had no access to disease modifying drugs for so long. If I had taken them, I probably would not have so many issues. Being angry solves nothing, though. I have to deal with my progression, and work to figure out how to keep it at bay.
I have RRMS. -- but it has steadily gotten more severe.