Need clarification from seasoned people with MS

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GreenJoy
New Member


Date Joined Oct 2017
Total Posts : 1
   Posted 10/18/2017 8:09 PM (GMT -7)   
Greetings!

I approached my primary with symptoms I had continuously forgotten to mention. Left facial numbness that felt like injected Novocain throughout my jaw, cheekbone, and temple. More recently numbness developed in my left shin. I really began to notice it towards the end of the day, after chasing my baby and toddler all day, and while cooking dinner. I'd massage my calf thinking it was swollen, but alas it wasn't. It just felt tingly and tight.

Immediately my primary referred me to a neurologist. He did a few in-person tests and told me that he thought it was be only fair to prep me with the possible diagnosis of MS.

My MRI with contrast showed one, possibly two, brain lesions in the white matter of my corpus callosum.

My spinal tap was a HUGE failure. I was okay up until I felt a painful pop from the needle going deep and I started to hyperventilate. I passed out. I remember not being able to wake up. I continued to go in and out of consciousness and could only hear my kids laughing and playing. I thought I was dying and began to have a panic attack. I cried, tried to talk and failed... anyway, it lasted for a while.

My next 'sedated' spinal tap will be next Thursday.


Is there some sort of way to have a probability of having MS? Is it unusual to have numbness that doesn't go away? Everything has been unilateral. I've recently had forehead numbness when I'm stressed.. that seems to be more right in the center.

I have unilateral numbness in my left face, left shin, and occasional forehead. The face started during my second pregnancy 13 months ago and is constant and gets worse when I'm exhausted from not sleeping. The shin started maybe 3 months ago and used to come and go; now it is constant, but gets worse when I'm tired or have been standing all day. My forehead is new and comes and go.

Nothing is noticeable drooping or not working. I'm worried that I have MS. I'm worried if I don't have MS.

I don't have the spinal puncture confirmation of proteins yet. But I do have the opinion of a few doctors, a brain MRI, and physical numbness that doesn't ever really go away - it just gets worse and better and worse and better.

I'm starting Occupational Therapy school right now and I'm trying to cope. I just need to know so I can work on measures to stop it or help. I need to be there for myself, my career, and my children.


An ideas?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 10/19/2017 6:07 AM (GMT -7)   
GreenJoy,

Welcome to the board. I'm so sorry you find yourself facing an MS diagnosis. Hopefully your lumbar puncture goes well and you get some fast answers. You may also want to ask for evoked potentials. That can be a helpful test. You may also want to ask for a spinal MRI. The numbness in your shin could indicate a spinal lesion.

The waiting is the worst part. Take good care of you. Seek support from family and friends. Keep us posted.

Gretchen
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.
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