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Shannonkru
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/1/2017 7:06 PM (GMT -7)   
First time on this forum.
I am 35 years old. 8 months post partum with my second daughter. Over the last 4-5 months I have been experiencing muscle tightness, tenderness and severe fatigue. Buzzing sensation to arms and legs. Frequent pins and needles sensation. Eyes slightly blurry (optometrist says they are okay). Overall feeling weak, clumsy, tired, and I am not trusting my muscle strength. Evoked potential test and MRI of head and neck normal.
Awaiting follow up with neurologist.
Any suggestions of questions or requests I should ask to the neurologist.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3547
   Posted 11/2/2017 6:37 AM (GMT -7)   
Hi Shannon,

I'm sorry you're dealing with disturbing symptoms and getting no answers. Being stuck in limbo is stressful and scary. It appears that at this time, you do not have MS. You may want to ask, "What else could be causing my symptom?" And/or "Could this be very early MS? Can we test again in 6 months?"

Good luck and keep us posted. Ask any questions you may have.
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.

ErikaMo
New Member


Date Joined Nov 2017
Total Posts : 8
   Posted 11/2/2017 4:25 PM (GMT -7)   
Hello-
I am new to MS and new to this forum. I’m terrified; simply put. I am 38 years old with an 8 year old son and 5 year old daughter- this can’t be happening!
My story starts a couple of weeks ago with numbness in my feet; then my calves; then my arm. A trip to the ER and 5 MRIs followed by a 1am diagnosis of MS. First by the ER doctor and confirmed by a neurologist. They started me on the high dose steroids right away- and I got those for five days; now I am on the oral steroids tapering off. I meet with ANOTHER neurologist Monday. I believe this is to work on my future treatment plan.
My current anxiety is - my symptoms.... I am a very active person- I work out or run at least 3 times a week... but right now my legs are SO weak I can barely stand. I feel wobbly and out of it. I played volleyball (use the term “play” lightly- stood on the court is more like it) a few nights ago and my serves barely made it over the net- no matter how hard I thought I was hitting. I feel like I’ve lost all control in just a week! Shouldn’t my symptoms be better by the end of the steroid treatment? With the symptoms being so present - I can’t get this new diagnosis out of my mind! Im thinking the worst- I don’t know what type I have or how Progressive it is or what.... I barely even understand what MS is yet!
I haven’t really asked any questions here- my apologies. I’m just so scared; want input; advice; information.... anything! Thank you

Shannonkru
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/2/2017 5:11 PM (GMT -7)   
Hi Ericamo
I am so sorry to hear about your diagnosis. I have not been diagnosed with anything and am in the very early stages of investigation so unfortunately I am not of any help to you. I think your may have posted as a reply to my post. (But I am new and may be wrong) but just confirm that you posted so that everyone can see your posts. You may get more responses. (Just trying to help you). There seems to be some great people on this forum that are very helpful. I hope that you get some answers/ suggestions. Take care
Gretchen- thank you so much for your response. I appreciate your time and you definitely provided a couple great tips. Thank you
Just a quick addition: has anyone seen the doc ‘living proof’ it is about a young man with ms who has had great successes with his treatment. May have some good tips.

ErikaMo
New Member


Date Joined Nov 2017
Total Posts : 8
   Posted 11/2/2017 5:14 PM (GMT -7)   
Oooop- sorry; you are correct and thank you. I’ll try again.
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