So over a year ago I was told by the MRI report and an MRI that I have MS, deciding that it was something I would rather not have I searched for and found another neurologist who said that the lesions were migraine related. I truly now believe that he based it on my history of chronic migraines and the fact that I take a preventative as well as a medication for when they happen.
This October I had my first real attack. It amplified my chronic pain and gave me only what I can describe as brain pain, not at all a headache in any sense that I have ever experienced. The chronic pain went to a 10 on the pain scale while the brain pain (something completely new) went way past that. I had thought that from my chronic pain that I was just done with walking. It took 3 days to hit it's worse like that for 2 then just completely back to normal on day 6. Just from horrible nothing worse to fine. This was so traumatic and painful I have not been the same since I am partially broken.
Then in November it started up again 31 days later. Knowing that I would not survive it a second time I went to the hospital and was admitted. I told them that it might be MS. So I was given ordered high doses of steroids, it broke on my 3rd day there. I had been utterly terrified of knowing how bad it was going to get but it was stopped before it hit it's worse. I got out on day 3 which was the 10th of this month. I have been searching for exactly what it was and I think it meets the definition of an attack I read at the National MS Society of either new or worsening of existing symptoms I had both.
That RRMS says that it has to be 30 days apart and last over 24 hours. It was 31 days and lasts 5 days untreated, 3 treated. So this is what my attacks are like I know some will have it worse and I am not trying to say no one does. It is these are beyond horrible I am going to be started on Betaseron but from what I understand this will not stop them from happening just give me chances for them not happening and not being as bad. That is about
the only thing that has me going right now are these chances.
I am scared that it is going to happen again in December around the 7th. And I am angry that it is happening and that even after the first one no health care professional said hey maybe that is actually MS after all. I came to the conclusion that the laundry list of things wrong with me are probably contributed to my MS. And that now the awful leg pain I have is more than likely a new lesion on my spine in my back.
As far as I am aware they were only in my brain before which I get a new MRI there as well so 2 looking for newer lesions. I am pretty positive that the brain pain I went through for those 5, and especially the 2 days did something permanent to my brain. Also at some point in the last two years I developed horrible neurological pain. I was taking Neurotin they had doubled my original doses and now have me on Lyrica but it is still there. Does anyone have this? Have you tried Lamictal or anything else?
I have made some paragraphs in your post to make it easier to read.
Post Edited By Moderator (straydog) : 11/21/2017 9:03:41 AM (GMT-7)