Bladder Question(s)

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Regular Member

Date Joined Sep 2017
Total Posts : 35
   Posted 1/12/2018 6:06 PM (GMT -6)   
I have nearly lost all urges to urinate. I went to the neuro last week. She mentioned MS, Vit D and B12 deficiency, diabetic neuropathy. So, I am doing some research until she looks over the CT and MRI's. Has anyone here had trouble with the loss of urge to urinate? I only know my bladder is full when my belly aches or I have the feeling like there is a small ball in my abdomen. I am having to check every couple of hours. Its only gotten worse. I have told the neuro and contacted my gp this afternoon. I was up for about an hour waiting for the ibuprofen and baclofen to kick in. Once the baclofen kicked in I peed 3 times and the ball feeling was gone.
Im not looking for a diagnosis. Just wondering if its something people with MS have a problem with. It started off as every great once in a while and now over the last few weeks it has gotten worse. I am really starting to worry. As much as I would like the docs to move a bit faster on this, I realize it takes time. The pain and ball feeling was excruciating last night. And the amount of times I awake with belly pain each night has increased. I havent found much on the loss of urge for the 3 possibilities I mentioned above.

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Date Joined Jan 2007
Total Posts : 3571
   Posted 1/12/2018 9:36 PM (GMT -6)   
Hey Dar,

This phenomenon is called neurogenic bladder. I have this as well but to a lesser degree. I know when I have to go. I have a sense of heaviness. Not the usual sensation. It can take several minutes to actually go. It can be like my brain has forgotten how to go. I have to be very patient. It can take 10 minutes or more to empty.

People who experience this as an MS symptom often have a spinal lesion. I know you aren’t diagnosed but your doctor may want to order a spinal MRI. I read on another post that you aren’t so fond of your neurologist. You may want to find one that specializes in MS. The MS Society can give you names.

By the way, you could always see an neuro-urologist. You may need to be taught how to self catheterize. Best of luck to you. Keep us posted.
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.

Regular Member

Date Joined Sep 2017
Total Posts : 35
   Posted 1/14/2018 1:39 PM (GMT -6)   
The first neuro I didnt like at all. The second one I am kinda weary of because in her paperwork that was sent to her it said head ache. Yes, I get headaches, but its a lot more than just headaches. I had to go over the whole thing with her again. I imagine I would have had to do that whether she had all the info or not. I also suspect who ever sent it to her, may not have had the room to put it all down. So I gave her a second chance. The second visit with her is when she mentioned it sounds like MS. That was scary. I was thinking fibromyalgia, which I was diagnosed with many years ago and thought maybe it had gotten worse, maybe it was my diabetes. I am also thinking maybe my bladder fell after having 2 kids and a hystarectamy. But they would have found that after my abdominal ct and mri. From what I have been told, diabetic neuropathy is more painful and more in the feet?? I am not quite sure of this. Vit B12 and D I am still researching as well.
I have plans. I am also a very busy person and able to less and less as time goes on. I have a family I am having a hard time keeping after. I have a job that requires a lot of walking. This is a good thing. It really helps loosen my muscles. There are mornings that I have muscle spasms and cramps in the middle of walking. I was actually thinking to myself the other day....if its diabetic neuropathy I have the chance of losing limbs, if its MS I have the chance of not being able to use my limbs. I am really really hoping for Vit B12 and D. If its not Vit B12 and D, I will be moving up my retirement plans.

Regular Member

Date Joined Sep 2015
Total Posts : 245
   Posted 1/14/2018 8:06 PM (GMT -6)   
Hi dar,

I would suggest seeing a Urologist. There is testing that can be done to determine what might be he cause for your inability/lack of sensation/emptying.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.
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