Pre Diagnosis MS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dar2017
Regular Member


Date Joined Sep 2017
Total Posts : 35
   Posted 1/26/2018 4:57 PM (GMT -6)   
I went to my appointment this morning telling the doc I didnt know where to go from here, theres not really much more we can do from here. She asked what the neuro had said, and I told her the neuro said not caused by diabetes, numbers are too low, not caused by low Vit D and B12, they are normal, and not MS because the foci are on one side of the brain. Thats when she said that the neuro had emailed her and said she wanted to keep an eye on me and suspects its the beginning stages of MS. The doc says she is giving me a "pre" diagnosis of MS. A bit of relief has been off my shoulders now, but I can only somewhat take this with a grain of salt. Last January I was positive on one test for Lyme but not another, Then it was a pituitary tumor on my ct, but didnt show on my mri. Now it is a "pre" diagnosis of MS. The doc says that i will be seeing her and the neuro on occasion to keep an eye on it. To see if there are anymore lesions showing on the other side.
This kinda brings up and ties into another medical problem I had. When I had my hystarectomy, the doc told me "Oddest thing...the right side of your uterus was nice and firm and pink, but the left side of your uterus was grey and limp".
So I dont know what to think of the "one sided trick" my body has decided to play on me.
But I do know for sure that unless there is and emergency, I wont be pursuing it any longer.
Can anyone explain to me in further detail "pre" diagnosis and the OMS diet?

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 245
   Posted 1/27/2018 9:43 AM (GMT -6)   
Hi dar,

I have no way of knowing what your Neurologist is thinking. Saying you have a "pre-diagnosis of MS" might simply be his way of saying he suspects MS, wants to follow up with you to see if, in time, you meet the diagnostic criteria for MS.


dar:
This kinda brings up and ties into another medical problem I had. When I had my hystarectomy, the doc told me "Oddest thing...the right side of your uterus was nice and firm and pink, but the left side of your uterus was grey and limp".


This would have absolutely nothing to do with Multiple Sclerosis
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 34666
   Posted 2/12/2018 4:21 AM (GMT -6)   
Hi Dar - you mentioned a positive Lyme test. Have you thought about pursuing that?
Many people with Lyme disease have plaque on the brain show up on mri’s.

My Dr sent me to a Neurologist to rule out MS, Parkinson’s and ALS because of my symptoms.

(Although I didn’t have anything showing on my mri)

I then tested positive for Lyme disease and am treating that now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 2/13/2018 8:42 PM (GMT -6)   
Girlie,

Welcome back. I hope you enjoyed a nice vacation. Thanks for posting.
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 389
   Posted 4/16/2018 10:30 AM (GMT -6)   
Gretchen. Hi. Remember me. Gary. Have not posted in here for months and months. I hope this finds you well. Take care!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/17/2018 9:39 AM (GMT -6)   
Hi Gary,

Of course I remember you!!! For the most part, I am well. I was diagnosed with breast cancer back in October. I’ve undergone a double mastectomy and I’m now about half way through chemo treatment. I’m hanging in there. I have taken a medical leave from work. After chemo, I finish up with radiation treatment. Then, hopefully, I return to my regularly scheduled life!

Tell me how you are doing!
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.

krr
New Member


Date Joined May 2018
Total Posts : 6
   Posted 5/30/2018 1:07 AM (GMT -6)   
Hey Dar,

which type of lyme test did you test positive for and which one negative?

Did your neurologist describe the foci as white matter lesions? Girlie is right, white matter lesions in the brain and spinal cord can show up in lyme as well. I've spoken to a few docs and neurologists about how "classic ms" and lyme white matter lesions tend to appear on MRI. And there are apparently some recognizable differences. It might be worth inquiring with your neurologist. It may not go anywhere, but it's worth getting him or her thinking about it.

Do you recall how many lesions or foci you had? And what size they were?

I do have an acquaintance who was diagnosed with ms and lupus at the same time, and then later discovered she had lyme. She was treated and is doing very well now. Not saying this is what you have, but a positive lyme test is an interesting piece to your puzzle.

I'm with Snoopy on his take of "pre-diagnosis". I have a friend who was told something similar a decade ago because she had a white matter lesion. There's been no change and the neurologists no longer wish to follow her.

smile
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 12:02 AM (GMT -6)
There are a total of 3,005,625 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161787 registered members. Please welcome our newest member, melzissa.
264 Guest(s), 1 Registered Member(s) are currently online.  Details
wednesday77