Posted 2/12/2018 2:21 AM (GMT -7)
Hi Dar - you mentioned a positive Lyme test. Have you thought about pursuing that?
Many people with Lyme disease have plaque on the brain show up on mri’s.

My Dr sent me to a Neurologist to rule out MS, Parkinson’s and ALS because of my symptoms.

(Although I didn’t have anything showing on my mri)

I then tested positive for Lyme disease and am treating that now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Posted 2/13/2018 6:42 PM (GMT -7)
Girlie,

Welcome back. I hope you enjoyed a nice vacation. Thanks for posting.
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.
Posted 4/16/2018 8:30 AM (GMT -7)
Gretchen. Hi. Remember me. Gary. Have not posted in here for months and months. I hope this finds you well. Take care!!
Posted 4/17/2018 7:39 AM (GMT -7)
Hi Gary,

Of course I remember you!!! For the most part, I am well. I was diagnosed with breast cancer back in October. I’ve undergone a double mastectomy and I’m now about half way through chemo treatment. I’m hanging in there. I have taken a medical leave from work. After chemo, I finish up with radiation treatment. Then, hopefully, I return to my regularly scheduled life!

Tell me how you are doing!
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.
Posted 5/29/2018 11:07 PM (GMT -7)
Hey Dar,

which type of lyme test did you test positive for and which one negative?

Did your neurologist describe the foci as white matter lesions? Girlie is right, white matter lesions in the brain and spinal cord can show up in lyme as well. I've spoken to a few docs and neurologists about how "classic ms" and lyme white matter lesions tend to appear on MRI. And there are apparently some recognizable differences. It might be worth inquiring with your neurologist. It may not go anywhere, but it's worth getting him or her thinking about it.

Do you recall how many lesions or foci you had? And what size they were?

I do have an acquaintance who was diagnosed with ms and lupus at the same time, and then later discovered she had lyme. She was treated and is doing very well now. Not saying this is what you have, but a positive lyme test is an interesting piece to your puzzle.

I'm with Snoopy on his take of "pre-diagnosis". I have a friend who was told something similar a decade ago because she had a white matter lesion. There's been no change and the neurologists no longer wish to follow her.

smile

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