Possible MS - Complicated Symptoms and No Diagnosis

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Shelin
Regular Member


Date Joined Jul 2018
Total Posts : 36
   Posted 7/25/2018 7:37 PM (GMT -6)   
Hey All,


I was wondering if any of you can help me. I'm not sure if this is MS specific or not but I really have no idea how to look into this otherwise. The last couple of months have been hard for me and I just want to start feeling better. I'm begging any of you to take a look at the below and let me know of any insight that you can possibly provide on the matter.
Over the last four months, I have been experiencing a wide range of strange and disturbing symptoms. I have not found any answers from a traditional healthcare standpoint and decided to reach out to you to see if you've heard of anything like this. Below, I will outline the symptoms that I have been experiencing along with the tests that I have done from a traditional healthcare standpoint. Again, ANY help that you can provide on this would be greatly appreciated. I have a young daughter at home and really need to start getting better. sad

Symptoms:
Frequent Heartburn - I've never struggled with heartburn before this. This causes a burning in my chest and tightness in my throat.
Chest Pains
Muscle Twitching - Body-Wide... This comes and goes and can be felt anywhere, especially in my legs.
Muscle Coordination/Off-Balance - I feel like my hands are not coordinated and that my balance is off, though when I test my balance, etc... I seem to be fine.
Muscle Soreness - This comes and goes and is not brought on by a specific activity.
Heavy Anxiety/Doom Feelings - These seem to not really be brought on by anything in specific.
Random Skin Rashes/Tingling Mouth - I do not have any allergies that I am aware of and this is a newer symptom.
Frequent Belching and Gas
Urinary Slowness and Frequent
Vision Floaters
Heavy fatigue after eating
Mouth Sores/Blisters
Hypersensitive Nerves - Water drops are very noticeable, etc.
Fine Motor Functions Appear to be fine

Traditional Healthcare Checks:
Heart Echo and Stress Test - Clear
Endoscopy and Celic/HPylori Screen - Clear
Neuro Exams x2 - Clear and no muscle weakness
Lyme Disease and Western Blot - Clear - Quest Diagnostics
Rhumotoidologist Exam - Clear
Endocrinologist - Ordered 7-Day Glucose Monitor and Testosterone Check.
Diabetes Blood Tests - Clear
Chest X-Ray - Clear
EKG - Clear
ANA Test - Mild Positive
Blood Sugar and C-Pep Tests - Mildly Off - Investigating Further
CBC Tests - Clear
Brain MRI - Clear
Spine MRI - Clear
Brain CT Scan - Clear
EEG - Clear
Lupus Blood Test - Negative
Inflammation Rate Blood Tests - Negative
STD Tests - Negative
Heavy Metals Blood Test - Negative
Vitamin Blood Tests - Negative
Parasite Stool Test - Negative
Vitamin Tests - All Fine - Except Low D
Kidney and Liver Blood Tests - Clear
Celiac Blood Test - Positive but then Endoscopy Negative for it.

I've basically learned to live with these symptoms at this point but I feel like things are getting worse. I keep getting told that I am find but I know that I am not. I find myself missing things sometimes when trying to grab something/missing keyboard keys, getting random rashes, etc. The most disturbing is the muscle twitching that can occur anywhere on my body.

I am getting nowhere with traditional medicine at this point and I feel that doctors are scratching their heads. I've done so many tests so it is hard to argue with them but I also know that the symptoms are still present and persistent. Really the only thing that we have to go on is a positive ANA test but the Rhumologist says that I am fine.

My diet and exercise patterns have always been excellent and I do not take any medication.

I'm really very troubled by everything and am desperate at this point.

I would really appreciate any information that someone can provide on my issues.


Thank You,

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3570
   Posted 7/25/2018 9:21 PM (GMT -6)   
I’m sorry you are struggling. You have quite a list of disturbing symptoms! You have had a normal neurological exam and clear MRIs. It appears that it is not MS. You have a couple of symptoms that patients with MS might experience, but most of your symptoms would not be caused by MS. I see you are also considering Lyme disease. The testing for that often shows false negatives. You may want to explore more testing for that.

Please ask any specific questions you may have. Best of luck to you.
Diagnosed with MS July 2006, Breast cancer 2017

I have no lesions on my soul and so I live with no limits.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 245
   Posted 7/26/2018 11:53 AM (GMT -6)   
Hi Shelin.

Have you had your vision checked recently? Floaters are very common and most people have them, if you have had your vision checked by an Ophthalmologist and there was nothing found then the floaters are of no concern. Muscle twitching many times is considered benign and can be due to stress and anxiety.

My first thought when reading your symptoms and normal test results was anxiety. You might consider being evaluated by a Psychiatrist and treating your anxiety to see if that helps any of your symptoms.

Take care.

Shelin
Regular Member


Date Joined Jul 2018
Total Posts : 36
   Posted 7/26/2018 2:31 PM (GMT -6)   
Hello Snoopy,

I have not had my vision checked recently but will consider doing this shortly. As for the anxiety related symptoms, I have been getting treatment for this as well but the doctors do not understand how they symptoms could be CONSTANT, never-ending and over the course of four months. Anxiety plays a factor like it does with anything but they are sure that it is not all related to anxiety.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 245
   Posted 7/26/2018 5:01 PM (GMT -6)   
Shelin said...
As for the anxiety related symptoms, I have been getting treatment for this as well


If you don't take any medications how is your anxiety being treated? Untreated anxiety can manifest in physical symptoms and will remain a problem unless the anxiety is controlled. Much of your symptom list would not be caused by a disease such as Multiple Sclerosis.

A positive ANA is really not specific and especially in the case of MS. Some with MS have a positive ANA and some don't. I have never had a positive ANA.

I do wish you all the best.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

Shelin
Regular Member


Date Joined Jul 2018
Total Posts : 36
   Posted 7/27/2018 2:47 PM (GMT -6)   
Hey Snoopy.

Thanks for the insight, I'll look into that further.

Shelin
Regular Member


Date Joined Jul 2018
Total Posts : 36
   Posted 8/2/2018 1:07 PM (GMT -6)   
Hey All,

I just thought that I should provide you all with an update on everything. So I met with an Allergist to discuss my symptoms and she is not worried from a allergy stand-point. She agreed to do the Mast Cell Activation blood and urine test as a precaution though she feels that my symptoms do not fit the profile. My most recent blood work Vitamin E, Cereal Allergy Grain Test, Mold Test, Basic Metabolic Panel, MMA Test, Thyroid Tests, Endoscopy/Colonoscopy, and many endocrine relatated tests... all have come back normal yet the wonderful symptoms still persist. I am going to meet with a functional doctor on Monday and just pay out of pocket for it. It is expensive but many people have recommended the office to me and if they can at least point me in the right direction, I'll be happy. Does anyone have any further insight?

Thanks All!

Beachbumgirl
Regular Member


Date Joined Jan 2016
Total Posts : 54
   Posted Today 9:03 AM (GMT -6)   
How about an MRI of the brain and spine?
The mds were questioning MS on me and the results of that test showed no plaques.

Shelin
Regular Member


Date Joined Jul 2018
Total Posts : 36
   Posted Today 2:34 PM (GMT -6)   
Same result for me, MRI of brain and spine came back fine. Very minor disk disease but nothing causing the symptoms. I'm waiting on the lyme disease and mold testing... basically nowhere else to go at this point. Maryasis Gravis and Mast Cell Activation tests came back negative as well.
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