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Can you guys help by telling me if this sounds like MS to you?

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Multiple Sclerosis
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rysbar123
Regular Member
Joined : Dec 2014
Posts : 67
Posted 1/1/2019 11:08 PM (GMT -6)
I've been diagnosed with Fibromyalgia, but over the last year I've been starting to wonder if it might be MS. I have an appointment with a Neurologist soon, but I hope to hear from you guys. The symptoms that mainly concern me are:

1.) My eyeballs are hurting a lot. Doesn't seem to be allergies, sinuses, or anything wrong with my vision. I've been to the eye doctor already.

2.) When I turn my neck at a certain angle I get a horrible, sharp pain in the side of my neck

3.) I get a horrible, burning pain in one joint that quickly spreads down my leg or arm and often jumps over to the opposite arm or leg so that both sides hurt.

4.) Random body will suddenly move involuntarily. Not huge moments, but noticeable. Even my eye moves on it's own sometimes in a different direction than my other eye.


Does this sound like MS to you guys? It doesn't sound like Fibro to me, but my other symptoms do overlap with both conditions. I'm not seeking a diagnoses, just looking for some input. I can be more descriptive or list all my symptoms if needed.


Thank you for any information!
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Snoopy
Regular Member
Joined : Sep 2015
Posts : 281
Posted 1/2/2019 9:15 AM (GMT -6)
Hi rysbar123.

Did your eye Dr. give you any explanation for your eye pain or eye movements? Did you see an Ophthalmologist? Usually the eye/vision problems caused by MS can be detected with a through eye exam by an Ophthalmologist or Neuro-Ophthalmologist.

The issue with your neck does not sound like MS.

Random movements and burning sensations could be due to a number of things. There is no symptom exclusive to MS. A diagnosis of MS is based on testing that indicates MS as a possible cause, a Neurological exam, and ruling out all other possible causes for a person's symptoms.

Best wishes on your upcoming Neurology appointment.
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Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 1/2/2019 3:06 PM (GMT -6)
Hi Rysbar123,

I’m sorry to hear of your disturbing symptoms. You have quite a few! I hope you can get some answers soon. Your symptoms could be caused by MS, however they could be caused by many other things as well.

When I was diagnosed, I had just one symptom. Over the years, as my MS has progressed, I’ve added to my symptom list. Each time a had a flare, I’d get end up with another symptom or issue to manage. That is more typical than starting with a whole host of problems. But, I am not a doctor and as you know, no one here can diagnose you.

I do hope you find the cause and that it is something more treatable than MS. Best of luck and do keep us posted.
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Snoopy
Regular Member
Joined : Sep 2015
Posts : 281
Posted 1/15/2019 8:08 AM (GMT -6)
Hi Gretchen1,

Gretchen1 said...
When I was diagnosed, I had just one symptom. Over the years, as my MS has progressed, I’ve added to my symptom list. Each time a had a flare, I’d get end up with another symptom or issue to manage. That is more typical than starting with a whole host of problems.

It is definitely possible to have a multitude of symptoms before any knowledge or diagnosis of MS. This was my case. I was mowing the lawn and suddenly had bilateral leg weakness, could barely walk, and become very tired. I went in the house and slept the rest of the day and night. Woke up the next morning, felt fine and went out to finish mowing. The same symptoms came back quite quick, did not improve and new symptoms kept coming

I saw my PCP who examined me, left the room, and came back with a referral to a Neurologist. From start to finish (PCP - Neurologist - testing - diagnosis) took 3 months. I had all of my symptoms during the entire process, those symptoms included:
~ Bilateral leg weakness
~ Bilateral hand tremors
~ Numb from the waist down including the girlie parts
~ Extreme fatigue
~ Loss of the majority of my mobility
~ Pins and needles in legs
~ Vibration/buzzing waist down
~ L'hermittes sign
~ Extreme pain

When I was diagnosed I learned I had been in a severe exacerbation. I was 23 years old. Did I have symptoms before this exacerbation? Yes, but it's very easy to ignore or brush off odd things we may experience, especially when you are a child, which is when I had symptoms of MS.
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