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Secondary Progressive MS

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Multiple Sclerosis
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PatMc
New Member
Joined : Apr 2019
Posts : 1
Posted 4/13/2019 5:40 PM (GMT -8)
Hi, I’m new to this forum. I have had MS for 20 years, recently my doctor says I’m in the early stages of secondary progressive MS. I will be seeing him in May to discuss treatments. Right now I am on Copaxone and I’ve been on it for 12 years. I’m trying to find out if anyone also has secondary progressive MS and your thoughts on how it is being treated and the new medications that are out there now. I am experiencing more numbness, heaviness and weakness in my left leg. Thank you. Pat
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cyclinglady
Regular Member
Joined : Aug 2015
Posts : 267
Posted 4/17/2019 5:56 AM (GMT -8)
Hi!

While I do not have MS, I do have three autoimmune disorders. My Mother in Law did have MS and was on copaxane. Since I have celiac disease, I had to change my diet. Gluten free is the only known treatment for celiac disease. It stops flare ups and heals the small intestine (repeat intestinal biopsies revealed a healed small intestine for me). I began researching to adjust my diet further to help with my other autoimmune disorders and found diets that have helped those with MS. Just healthy food filled with fruit and veggies, meats and fish, etc. The MS support groups emphasize drugs for a cure, but food might be the solution. The problem is there is little funding to research food.

https://www.webmd.com/multiple-sclerosis/wahl-diet-ms

This was a movie on Netflicks and there is a website. Here is the movie trailer:

https://m.youtube.com/watch?v=fjwSz2xsD1s

Diet, in conjunction with meds may help! I know that diet has helped my autoimmune disorders. Now, I no longer have nodules or an enlarged thyroid. That went away when I began a diet that avoided grains and processed foods. Sure I have Hashimoto’s but it appears to be in remission along with my celiac disease. I wish I had know about diet before my MIL passed. Keep advocating for yourself. Hugs!
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Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/24/2019 6:57 PM (GMT -8)
Okay so as far as I’ve experienced, I’m not seeing “MS support groups” emphasizing drugs for a cure. And by the way, there is no cure.

PatMc, I am so sorry you’ve transitioned to secondary progressive. I don’t have any experience with that. I’m just here to show support. I dearly hope your doctor can make some positive suggestions to slow down your progression. There are more med options for secondary progressive out now. Hopefully one will work for you.

Keep us posted as to how you are doing.
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Madanii
New Member
Joined : May 2021
Posts : 2
Posted 5/24/2021 10:16 AM (GMT -8)
Hi Pat, I'm Madanii
I was recently (literally 2 weeks ago) diagnosed with secondary Progressive MS, from relapsing-remitting MS. I was given copaxone shots at age 13 but only ended up continuing with the medication for a year due to do many side effects it had on my premature self. Then LDN and retuximub infusion, but the first medication I was on was steroids
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