Injection problems

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Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 5/6/2006 5:14 PM (GMT -7)   
Hello all,
 
I wanted to pick your brains. Has anyone else ever gotton an injection set up and ready to go and found that they just could not do it? I mean I cant phycologicly make myself pull the trigger on my autoject. The longer I sit there the more frustrated and upset I get. My wife will help if I ask and has. But even with her pulling the trigger I am a wreck about it. Twice now I have pulled the needle out before it is done delivering the injection.
 
I have to admit this is really bugging me. I am the "strong" one in my home, to be beaten in my mind by someting I've already done a hundred times gets to me. My wife thinks I am starting to come to terms with having MS. I think theres nothing to comes to terms with. I have MS. nothings going to change that so I just go on.
 
Anyway enough of my ranting. I value all of your input and look foward to any advise you all may have to overcome this metal block.
 
as always - Pete


"If you don't talk to your cat about catnip who will" - CCL 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/6/2006 6:03 PM (GMT -7)   
I can't do the autoinjector thing. Scares the heck outta me. But no, I've not had a problem with manually injecting myself...so long as I don't do it in my arms (a strong block there!)

Love your tagline, about cats and catnip :)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/6/2006 7:18 PM (GMT -7)   
Hi Pete,

I do all the injections for my hubby, as he has a fear of needles. He too prefers the manual approach to injecting, when I do it that is, because he says it's less painful to him. It doesn't sound like that is your problem but it might actually help you if your wife does them for you for a while. Just a thought here, and I may be way off base, but maybe since you do have to be the strong one all the time you just need a bit of pampering yourself? All of us do need that from time to time. Lots of (((HUGS))), I hope you figure it out.

Kimber
dx: asthma, anxiety, inflammatory arthritis, suspected Lupus or RA
     Caregiver to hubby with PPMS
 
Let Healing Well continue to help others, click link for details
 

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/6/2006 8:12 PM (GMT -7)   
Pete,
I was the same way when taking the Rebif. There were days I didn't know if I could do it, I froze and just about cried, I knew it would only hurt momentarily but it was a mental war. I am now on Avonex and I will be going to my primarys office to have the nurse give it to me, maybe one day I will have the nerve to give it myself but boy....that's one long needle!!!

Hang in there, you're not alone!
Michelle ><>
 Put simply, we will never know that God is all we need until God is all we have.


Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 5/7/2006 2:18 AM (GMT -7)   


~ Prayers & Shares ~
Finally, whatever is true, noble, right, pure, lovely, admirable
-  if anything is excellent or praiseworthy -
think about such things. 

Post Edited (Neurotransmissing) : 7/24/2006 12:40:53 AM (GMT-6)


Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 5/7/2006 1:49 PM (GMT -7)   
 


~ Prayers & Shares ~
Finally, whatever is true, noble, right, pure, lovely, admirable
-  if anything is excellent or praiseworthy -
think about such things. 

Post Edited (Neurotransmissing) : 7/24/2006 12:41:11 AM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/7/2006 3:05 PM (GMT -7)   
Papa_Bear

I have ABSOLUTELY no experience with injecting anything other than a turkey..and not too good at that...but just reading thru these posts i can say if u don't have to/need to..there's no need to add anything to u'r "plethora' of meds. Use the autoinjector as suggested until/unless u feel differently. Cut u'r loses and enjoy life as much as possible..don't get worked up over something that doesn't have to be an issue. Remember....QUALITY of life.

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/7/2006 3:33 PM (GMT -7)   
Pete,

I have faith that you will overcome this, and please don't beat yourself up for it :-) We found out by accident that he prefers manual injecting. It is not something that we had originally planned initially but the autoinjector broke and we "had" to do it that way. The autoinjector I believe is preferred by most people due to its hiding the needle and pushing the plunger for you, much easier! Many hugs for you and try not to fret over it.

Kimber
dx: asthma, anxiety, inflammatory arthritis, suspected Lupus or RA
     Caregiver to hubby with PPMS
 
Let Healing Well continue to help others, click link for details
 

Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 5/8/2006 5:45 PM (GMT -7)   
Thank you all for the input and support. I should mention I'm on betaseron so its every other day.I did do the last two but it was a challange. As far as doing it without the autoject, not just no but he** no! lol! It would never happen.
 
as always - Pete
"If you don't talk to your cat about catnip who will" - CCL 


sjk
Regular Member


Date Joined Apr 2006
Total Posts : 296
   Posted 5/8/2006 7:52 PM (GMT -7)   
I choose not to use the auto injector, but I understand that not everyone can do that.  I've been giving myself B-12 shots for years, so the injections aren't a problem for me.
Life may not be the party we hoped for, but while we're here we might as well dance.
Selina


Sandy C.
Regular Member


Date Joined Feb 2006
Total Posts : 129
   Posted 5/8/2006 11:41 PM (GMT -7)   

After the first couple injections of Betaseron, manual injections haven't been a problem for me. The autoject used to scare me till I actually did a dry run with a syringe (took about a year). I decided to use the autoject because the copaxone injections are way too painful for me and thought it would make it easier.

Tonight I am very scared of the stupid injection and want to cry because I dont' want to do it anymore!

Last Saturday, I have the one major side effect of chest pain, shortness of breath and flushing right after an injection... In real life terms this translates into SQUEEZING CHEST PAIN, FEELING LIKE A ROPE HAS BEEN TIED AROUND UR NECK, and like ur face WILL "POP" because of the cut off in circulation. Fortunately I had a friend here and was able to make it outside to him before I colapsed. He said I turned blue in the lips and purple in the face. By the time the fire dept got here I was starting to feel better, they gave me oxygen and by the time the medics got here I could almost think normally again. I didn't go to the hosp and I have done my injection every night since.

The fear of the injection is making the "normal" pain feel worse and/or diffrent. I am also injecting "virgin" spots because they were previously more painful...hmmmm. Yeah I know that sounds bad but even the routine spots are hurting more.

I am scared, but I hope it will pass. Any suggestions...
 
Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Copaxone.


kicks
New Member


Date Joined May 2006
Total Posts : 3
   Posted 5/9/2006 8:08 AM (GMT -7)   
I had to register so that I could answer this post. I am a reader not a poster at heart. However, I wanted to tell you my experience. At the beginning of my auto injector I would have a hard time pushing the end cap. The medicine going in was so painful that I would have the hardest time, because I knew what I would get.

I remember sitting with the auto injector and I just couldn't do it. It took an hour, when I finally did it (I would push the end, and be grateful I didn't push it hard enough..I played this game for that hour until I did push it hard enough) I ended up pulling the needle out in the middle of injection. A few times I had to call my daughter and ask her to push it, cuz I just couldn't.

At this point, I don't use my auto injector any longer. I have a husband who will 'shoot' me in the hard to reach area's. It's more gentle, and I find the medicine going in slower doesn't hurt as much as the wham of the injector. Anyway, yes I have been there and I sympathize. It's a tough thing to do and takes a lot of patience to get it done. I have cried many times trying to get my shot done. It's not a pleasant experience.

I agree also with Shayla when it comes to skin sensitivity. I have that really bad, where sometimes I change a shirt numerous times until my skin could tolerate one. My nerves I guess. This doesn't help when you have a shot scheduled for that area.

And my shots for years have been worse than a bee sting. And my skin where I gave the shot would be painful for days. No .. for me the shots have been terrible. I am now tolerating them better, I guess after taking them for years I have finally adjusted? Who knows with MS. Maybe I will wake up tomorrow and start having the problems again.

take care, and know that one person has experienced everything you said.

tangy

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 5/9/2006 9:19 AM (GMT -7)   
Wednesday noon

Dear Pete: Even after listening to all the medical pros, reading all the literature, having a family member try to help you, how about this non-medical suggestion. Have your wife help you after a couple of Budweisers.

It seems like you are thinking too much...you 'da man.

Good luck. John

Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 5/9/2006 2:27 PM (GMT -7)   


~ Prayers & Shares ~
Finally, whatever is true, noble, right, pure, lovely, admirable
-  if anything is excellent or praiseworthy -
think about such things. 

Post Edited (Neurotransmissing) : 7/24/2006 12:41:35 AM (GMT-6)


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/9/2006 2:30 PM (GMT -7)   
Hi Sandy,

My hubby has experienced the chest pain, shortness of breath and flushing on a couple of occassions on Copaxone over the last five years. It went away in about 15 minutes, but it was scary. You may want to consider talking to your doctor about it especially since your lips are turning blue during this episode and you are having trouble with painful injection sites.

Kimber
dx: asthma, anxiety, inflammatory arthritis, suspected Lupus or RA
     Caregiver to hubby with PPMS
 
Let Healing Well continue to help others, click link for details
 

tinydancer
New Member


Date Joined Apr 2006
Total Posts : 10
   Posted 5/9/2006 4:56 PM (GMT -7)   

Hi all!

I have been useing the auto injecter for 3 years now. I couldn't do it without it. I was on Copaxone for 2 years then doc put me on Betaseron now. The Copaxone did sing alot for me. But the Beta is so much easyer to take, just putting up with the flue sxs is a pain. The auto injecter I use with the Betaseron is so much like the Copaxone one. And I to hate taking shots but I count to 10 and its over. So hang in there and you can do it. I use the back of a chair to get the backs of my arms, my husband helped me with the Copaxone and it hurt like ****. So I just do it myself. I feel like I have controll over hurting myself. lol

Take care tina.


my5cats
Regular Member


Date Joined Dec 2005
Total Posts : 67
   Posted 5/12/2006 12:22 PM (GMT -7)   

Okay, I have that happen sometimes too, then I remember that I forgot to take my xanax...lol  Do you take anything for the anxiety of the injection?  I take my xanax half an hour ahead and I'm much better.  I use Avonex, so it is a LONG needle and it still makes me nervous, but with the xanax, I can do it.  Anyone who has a partner who will help is entitled to take a night off when it is needed.

Good luck!


Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 5/12/2006 1:12 PM (GMT -7)   


~ Prayers & Shares ~
Finally, whatever is true, noble, right, pure, lovely, admirable
-  if anything is excellent or praiseworthy -
think about such things. 

Post Edited (Neurotransmissing) : 7/24/2006 12:41:55 AM (GMT-6)


Member
New Member


Date Joined May 2006
Total Posts : 1
   Posted 5/26/2006 8:34 AM (GMT -7)   
Dear Pete:

I came across this forum while doing a search to remind myself whether I had to keep the two pieces of the autoinjector together after pressing the "trigger." I registered in order to respond to your post.

I completely sympathize. I've been injecting myself for about six weeks using the autoinject device. I've already started to dread it and have "accidentally" skipped some injections, although I'm now trying to ride herd on myself because, as you noted, one has to do what's necessary to control this horrible disease. (Which fortunately, I have only in a very mild form so far.) And I have no one to do it for me.

As for the injection itself, I try to do it as quickly as possible -- pausing to think only increases the anxiety. This is more easily said than done because getting ready to take the shot is always something of a production.

***Most important, I try to remember that the injection itself is usually no more painful than the feeling of having a rubberband snapped against one's skin. What are painful and irritating are the sting, the welt, the redness, the hardening of the skin underneath. It's hard not to associate the popping sound of the trigger and intense stinging, although it comes from the medication, not the needle.

I've called Shared Solutions a few times and although they are always friendly and helpful, I suspect they're giving me the party line. They claim that the stinging lessens in time, but over the past few weeks, it has been getting worse, not better. I've been told I can apply some kind of cortisone cream to relieve the itching, but they don't seem to realize that I'd be using it day in day out, which is not usually recommended.

I've also tried using the heating pad they sent me once for five minutes, followed by one minute of ice. As usual, I applied pressure to the wound for a few minutes with a ball of sterile cotton before using the ice. It didn't make a difference. Obviously, I need to try the heat and ice combo at least a few more times before giving up on them.

I was also told unofficially that the stinging might be lessened if I used soap and water to cleanse the injection site instead of the alcohol wipe, but that I should check with my doctor. I have an appointment to discuss that.

I've been trying to look on the positive side by viewing the after-injection waiting time as guilt-free web-surfing time, the dessert after the spinach. It's hard, but not impossible to type with only one hand because the other's applying the cotton ball.

I'm also trying to remember to experiment with settings for the autoinjector (I've been wary, because I don't want more discomfort than I already have.). One day I hope to work up to manual injection, although doing the nondominant arm looks hard. Even doing it with the autoinjector is a challenge.


Good Luck!

Post Edited (Member) : 5/26/2006 2:17:29 PM (GMT-6)


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 5/28/2006 5:18 PM (GMT -7)   

Hi all,

I've been reading this thread with interest as I just did my 5th injection of Betaseron last night.  I have used the autoinjector the last 2 times and what a difference!  I love it.  (if you can love such a thing. lol)  It gives me so much more confidence knowing that the needle is going to go in straight, come out straight, and the medicine will be delivered smoothly.  My boyfriend tried it on me and also preferred it to doing it manually.  Just my experience so far.

I was supposed to use a half dose for a month, then increase to a full.. but it's been going so well I increased it to 3/4 dose last night, didn't take my 2nd Tylenol, and still felt good.  I hope this lasts and I don't get in trouble for increasing it myself. nono

Shar


Beth A.
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/10/2006 5:03 AM (GMT -7)   
I had the same problem, then I found ice! I have a strong mind but a very low pain tolerance when it comes to any kind of needle. I put an ice pack on the injection site about 15 minutes before I'm going to do it. Then, when I poke the site and can't feel much, I hurry to give myself the injection with the autoject before the area gains feeling again. It is almost like you can't feel it at all--I promise! After you do it one time like this, you'll get frustrated with yourself for being scared. Afterwards, of course, it is uncomfortable for about 15-20 minutes, but the injection is now the easy part. In addition to this, I bought a meditation DVD because I am an extremely high-stress person. When I walk through the door after work every day, I meditate for 15 minutes, clearing my mind of anything and everything. When it comes time for the injection, I take three deep breaths, count to three, and on three, I'm done. I then wait until the bleeding stops and put the ice pack right back onto the injection site (without any pressure) to minimize the pain that I feel at the site. Hope this helps!

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/10/2006 6:17 AM (GMT -7)   
Somebody asked about not using the alcohol swabs with Betaseron. It really is all right to do that! The needles used to inject Betaseron are the same as folks with diabetes use to inject insulin. There are actually instructions for folks injecting insulin on "how to discreetly inject through clothing"! when they're out in public...and alcohol swabs are NOT part of that picture!

Yes, make sure your hands are clean, the area where you're about to inject is clean, and you don't set the needle down on a dirty or dusty surface...and if you take those general precautions, you should do fine.

I've been injecting Beta for 12 years, now. Haven't used the swabs for the last 10 years or so, and have had NO complications. Certainly ask your doctor, but it really is OK to do it.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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