stomach problems???

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beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 6/10/2006 1:47 PM (GMT -7)   
confused  Hi I was just wondering if anyone has ever had some stomach problems with their MS, like bloating after eating or gas? Had all kinds of tests and all came back normal. I guess maybe it could be related just wasnt too ask...Dont really have diahrea, i do get constipated but it isnt that bad,this bloating doesnt seem to want to go away....thanks.....

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/10/2006 2:27 PM (GMT -7)   
It's not clear from your post. Do you have a diagnosis of MS? Or are you wanting to know if stomach problems are a presenting symptom of MS?
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 6/10/2006 3:24 PM (GMT -7)   
No, I do not have a defenite diagnosis, it is said possible, but I really do believe that's what it is. have had many other test to rule things out, just wondering if other people were having these problems...........thanks......

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 6/10/2006 3:47 PM (GMT -7)   
beannie said...
No, I do not have a defenite diagnosis, it is said possible, but I really do believe that's what it is. have had many other test to rule things out, just wondering if other people were having these problems...........thanks......
Stomach problems are not a "presenting system" of MS. That is, if you walked into a neuro's office and said, "I have stomach problems, do I have MS?", it's likely he'd send you to a gastroentroologist -- a doctor experienced with stomach, colon, and digestive problems, rather than consider that you have something neurological going on.
 
People with MS who DO have stomach problems generally have problems because their bowel -- a muscle -- stops working properly. It doesn't move in the rhythm that it needs to, to expel waste. And so fecal matter lie there and don't evacuate regularly (daily, or every other day).  While some folks with MS have constipation -- their fecal matter expels in hard rounded balls, with much pain and discomfort --
 
more often, if they have bowel problems, they're more like this: they won't have a bowel movement for 3-4 days, and then have urgency, and sometimes incontinence.  The stools will be very soft, yet formed, in large volume, (not dry and hard). 
 
Any time the fecal matter lies in the bowel un-evacuated, it can cause gas. But then, some foods can cause gas (beans, cabbage, broccoli, cauliflower, among other things) can cause gas. Adults, and particulary African-American, Asian, American Indian, and some other ethnic groups are particularly susceptible to lactose intolerance -- an inability to digest milk -- and drinking milk or eating a lot of dairy can cause gas.  I'm not in any particular "targeted ethnic group", but I also suffer from lactose intolerance.
 
Talk to us more about what symptoms you DO have that make you think you have MS..and maybe we can help you figure out where to go to get good treatment.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 6/10/2006 4:06 PM (GMT -7)   
thanks for getting back to me so quickly...this site is so "GREAT", i love it! Well I do have all of the classic symptoms, numbness in my face, tingling in arm and leg, dizzy, nausea sometimes, pain in different areas of the body. I have had optic neuoritis in my right eye twice. I also have six lesions on my brain from my last MRI. This has been going on with me since I was in my early 20's, I am now 49, will be the BIG 50 in Septemeber, YIKES! My neuro said it sounded like I didnt have the symptoms of MS. I have had so many tests done I just dont know whats left to do. Had the colonoscopy, upper GI, vaginal ultrasound, checked out my kidneys with ultrasound because I had a recent kidney infection out of the blue. Had no symptoms except a sharp pain in my back for 2 days so went to doc's and took a urine test and it was infection. They put me on Cipro for 5 days, took all of it and when i finished the pain came back so she put me on more, and then I had the ultra sound tomake sure everything was okay and it was. So this whole bloating thing is very new, I do have some constipation on and off. Well thats my story, sorry its long......thanks again you guys are great.......

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/10/2006 4:30 PM (GMT -7)   
beannie said...
thanks for getting back to me so quickly...this site is so "GREAT", i love it! Well I do have all of the classic symptoms, numbness in my face, tingling in arm and leg, dizzy, nausea sometimes, pain in different areas of the body. I have had optic neuoritis in my right eye twice. I also have six lesions on my brain from my last MRI. This has been going on with me since I was in my early 20's, I am now 49, will be the BIG 50 in Septemeber, YIKES! My neuro said it sounded like I didnt have the symptoms of MS. I have had so many tests done I just dont know whats left to do. Had the colonoscopy, upper GI, vaginal ultrasound, checked out my kidneys with ultrasound because I had a recent kidney infection out of the blue. Had no symptoms except a sharp pain in my back for 2 days so went to doc's and took a urine test and it was infection. They put me on Cipro for 5 days, took all of it and when i finished the pain came back so she put me on more, and then I had the ultra sound tomake sure everything was okay and it was. So this whole bloating thing is very new, I do have some constipation on and off. Well thats my story, sorry its long......thanks again you guys are great.......
It's unfortunately quite possible that you could have several things going on, unrelated illnesses.
The optic neuritis: was this confirmed by an opthamologist? And when was your last MRI?  If indeed you have optic neuritis, and lesions -- it's not clear to me why your doctor is not considering MS?
Kidney infections are notoriously hard to treat.  Bacteria "hides" in there and can be difficult in getting it taken care of.  Double rounds of Cipro are a common treatment.
The colonoscopy, upper GI, vaginal ultrasound -- all that, have nothing to do with diagnosing MS.  Those are all for other conditions.  The ON and the numbness and tingling are the only things that are typically MS, and the lesions that appear on the MRI.
But you need to know that lesions can appear on an MRI for reasons other than MS.
What you need to say to your neuro now is: "OK, if you don't think this is MS, and I've had all these other tests done, what ELSE could be causing these problems...and who should I see?" A rheumatologist might be a next step.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 6/11/2006 4:18 AM (GMT -7)   
Thanks Uppitycats....they did all those other tests just to make sure that nothing was going on....and everything came up good, so it just leaves me scratching my head. I just get so frustrated, it's like no believes me that I am having problems, my husband does thank God for him. I am going to see if I can find another neuro this week. My last MRI was in 2004 with and without the contrast. I have been tested for arthritis and lymes and lupus and have my thryroid checked because that is in my family history. Well I guess I will keep plugging along until I get some results. Thanks so much you are great......

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/11/2006 5:11 AM (GMT -7)   
A 2004 MRI is old. Changes can happen in 6 months, even less. Probably time for a new MRI. If you DO see a different neuro, it's quite possible he'll want one anyway..so you might start doctor-hunting...
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/11/2006 9:26 AM (GMT -7)   
Hi Beannie,

Welcome! Please let us know if you find out anything. My hubby has lots of stomach problems, some associated with MS and some aren't. There are some other factors that can contibute aside from MS, stress, diet and medications can also play a role. I hope you find a new doctor that will help figure out things for you. You are in my thoughts and prayers.

Kimber
 
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mb1952
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/20/2011 7:08 PM (GMT -7)   
Beannie

I suppose six years is a bit late to respond to a posting, but I know full well what you mean by a bloated and swollen stomach with MS. I don't know why it happens , but I know too well what you mean.

-mb
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