Tell me about pain?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined May 2006
Total Posts : 137
   Posted 6/16/2006 2:48 PM (GMT -6)   
Hi Everyone,
This is not an update on the 15 rounds of determining if I have MS and the story behind it.
Just a question. I read where at one time they thought there was no pain with MS and now
I just looked over an report that indeed there is.
Can you explain what your experiences are like? (ie. Was it a single pain, or multiples, was it short or long, did it move, what brought it on, did say tingling quit and pain started and then tingling, more in legs or arms or neck or, sharp or achey, etc etc)

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 6/16/2006 4:06 PM (GMT -6)   

I have a really hard time with this sort of question, because I apparently define "pain" quite differently from other people.  All I can do is tell you my experience.  I've had MS for 24 years, now.

I don't experience constant pain, as I define it.  I do have spasticity in my legs, sometimes my arms, occasionally my back and shoulder.  My legs are always feeling like they are having "charlie horses". When it happens with my back and/or shoulder, it is quite painful, but brief -- muscle spasm, and then it stops, and the shoulder is a bit sore, until the next spasm.

When I was walking (I now use a wheelchair full time) my legs would ache after walking for longer distances.  This would go away upon rest.

I have always experienced tingling and numbness from mid-torso to toes.  I don't call this "pain", more "discomfort".  Part of it is that I'm so used to it, after 24+ years, that I just don't notice it anymore.  When my feet get hot (like, I just came home from driving for about an hour in 90 degree heat...even with air conditioning running full blast in the car, it's STILL hot!!) the tingling is worse, especially around my ankles.

But chronic debilitating pain, pain that requires medication, or even seroius drugs, isn't in my experience. 

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 6/17/2006 6:32 PM (GMT -6)   
Hi Michael,

We had a thread on this a while back but I was unable to find it for you. Anyway, yes some people do experience pain with MS and the severity seems to vary from person to person.

My husband's pain started with a burning aching type sensation in his feet. He was still working then, but the longer he was on them the worse the sensation got and he would come home with his feet as red as lobsters. After he rested for a while it did seem to subside some.

Nowadays, he has the pins and needles and spasticity issues that come and go in his arms, legs and shoulders. He finds these to be a mild discomfort compared to the burning pain he has pretty much everywhere now. Heat and stress both seem to make the pain worse for him.
Allow Healing Well to continue to help others, clink link for details

New Member

Date Joined Jun 2006
Total Posts : 1
   Posted 6/17/2006 7:07 PM (GMT -6)   
I was diagnosed in 2000. Yes I am in constant pain but maybe it is just me. about a 3 in the 1-10 scale. Mostly lower legs and feet today but it does surface in other and any other part of my body. Even before diagnosis my calves and thighs were very painful. Sometimes pain has been a precusor to an exaserbation like severe eye pain before optic nuritsis. And the leg pain before my legs became paralised. But that has not always been true and most of the time the pain is just that pain. Yes you do become used to it because it becomes your new normal. Still there are many meds to treat the pain so ask your Drs's. For me sometime just ibruprofin is enough. I did not have much luck with neurontin because it made me spacy and I donn't need any extra help for that.

Regular Member

Date Joined Apr 2006
Total Posts : 136
   Posted 6/19/2006 4:15 PM (GMT -6)   

Hi All,

I am also in constant pain especially in my neck, right shoulder, right arm, and right leg. On a scale of 1 to 10 I would give it a 6. I have a high threshold for pain so pretty much try to ignore it except when it reaches the point of excruciating nerve pain which is absolutely mind numbing.

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 14, 2018 3:30 AM (GMT -6)
There are a total of 2,992,443 posts in 327,957 threads.
View Active Threads

Who's Online
This forum has 161192 registered members. Please welcome our newest member, dfgrdheh.
222 Guest(s), 1 Registered Member(s) are currently online.  Details