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whtedragons78
Regular Member


Date Joined Jun 2006
Total Posts : 74
   Posted 6/21/2006 3:50 PM (GMT -7)   
Dont know what is happening to me since last July, i feel its MS, but 4 neuros are still up in the air.  I feel that over the past 3 weeks or so, that im having a flare up again.  The tingle, pin prick skin crawling sensation is back. On and off again speech issue.  And the headache has also returned.  Just wish they would say one way or the other.  I have heard things such as; early detection is not an issue, wont make a difference; maybe tumor, maybe stroke, maybe MS, maybe seizure disorder.  Its like they are putting dx's on a dart board and whatever the dart lands on is what they say at the time.  Hope everyone had a good day. Thanks for letting me vent.
Cyndi

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/21/2006 4:22 PM (GMT -7)   
Hi Cyndi,

Welcome! I was just reading your other post about your situation, so sorry you are in limbo! We seem to have quite a few in limbo here at the moment. As frustrating as it is, it can unfortunately take some time to figure things out so try to hang in there!

Best of luck with the new doctor. If you have had a brain MRI done recently having a new one done too soon probably won't show anything new. It might be helpful if you got a copy of your MRI's to take with you so they can see the difference between the two. You could also ask about getting a spinal MRI done to see if there are lesions there. Sorry about your recent eye problem sad Did they mention anything about optic neuritis? You should tell the neuro about this as well and make sure you write all your symptoms down ahead of time: past and present symptoms along with how long you've had them, if they come and go, are continuous or getting worse.

My thoughts and prayers are with you. Feel free to vent or ask questions anytime, we'll do our best to help!

Kimber
 
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whtedragons78
Regular Member


Date Joined Jun 2006
Total Posts : 74
   Posted 6/21/2006 7:25 PM (GMT -7)   
ty for the response, my first mri was in july the last one was just about 3 weeks ago, they have never done a spinal MRI and i have requested it. Most of my mothers lesions are located in her spine very few in her head. The eye dr said that the optic nerve looked fine.

I will be typing a list of symptoms that i have had since this all started and taking it with me to the appt. The second eye dr also wants it to be able to help figure out what is going on in my eyes.

Thanks for the suggestions.

snowdog
Regular Member


Date Joined May 2006
Total Posts : 137
   Posted 6/22/2006 1:01 PM (GMT -7)   
Just a quick comment. You didn't say if your mother was having a hard time
seeing? If that is the case !

My Opthomologist insisted on,
and booked an appt. with a Neuro/Opthomogist the minute
he suspected anything like MS. ( I did indeed have
optic neuritis, which was all he needed to take it a step further.)

These are specialists not only with eyes, but the brain
and spine. In fact they can, if MRI's of the brain,
and of the spinal cord have been done, plus some tests of their own
conclude in a hurry, what may be going on.

Optic Neuritis can come and go and just because the nerve
looks fine today does not mean it looked that way weeks ago.

Furthermore, my retina is fine, but I am losing my site in one eye because
the signal sent from the eye through the brain and back with the image
is getting scambled by a short ciruited nerve mesh, most likely because the
protective coating is gone due to MS.

So in essense, it is not the Optic Neuritis that is slowly killing my sight, it
is the brain and it took a Neuro/Opt to find it.

So, my advice is simple......if she has problem with her eyes....take the
MRI already done, and go see one of these specialists.

whtedragons78
Regular Member


Date Joined Jun 2006
Total Posts : 74
   Posted 6/22/2006 2:08 PM (GMT -7)   
thank you, i will talk to my GP on getting a referral to go see a neuro/opt.  I dont think there is one here in the town i live in but he will know where to send me.  I didnt know that info about the opt neuroitis, thanks a bunch.  I will call my mom tonight and find out about her sight too. she hasnt mentioned it but again i havent asked her either. 
 
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