I am 25 years old and was diagnosed a couple years ago. Since then, I have no real defined relapse per say. Just good days and bad days and lately seeming to progress slightly to worse days.
When I was 19 years old in college I remeber coming home from class sooo tired, for no apparent reason. That was the first time I felt the MS. After that, and before I was diagnosed, I had a lot of fatigue and was diagnosed with plantar facitis for my foot pain...In my family I became "known" as lazy Sandy, the whiner.
Now, I know why I am so tired and irritable at times. But it seems like I am getting worse. At first I thought I would be able to work around the MS, knowing what is causing me to feel what I am feeling. I think about the fact that I have MS ALL THE TIME. I use my energy the best I can knowing it isn't going to be there tommorrow if I do certain things today.
I hear people all the time say that they have had MS for years and it's not till recently that their symptoms have gotten worse. In the first few years, what was it like for you? Did you forget about it and it went away?
I try not to worry about it. On my good days I can almost forget. Then the next day when I still feel good, I think I am going to be okay. But then next week hits and I can't get out of bed. This is common for me. Now I am starting to get more "aches and pains." My doc just put me on Baclofen (grrrr) for it. My neuro exam has gotten slightly worse, but not bad and I did have an exacerbation earlier this month.
I just feel like I worry too much and that is why I am getting worse. I feel like I am overly sensitive to "small" changes. I can't say that I have ever truely felt recovered from my first relapse, but have no reason to think I haven't, if that can make sense.
I honestly wish I was never knew that I had MS. When I was told I had MS so much in my life made sense. Now I feel like MS is consuming me.
Ok that is all. If you have any toughts I would love to hear them.
Diagnosed with Multiple Sclerosis September 2003 currently taking Copaxone.