Frustrated! Do all dr's have a God Complex?

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Counting My Blessings
Regular Member

Date Joined Apr 2006
Total Posts : 53
   Posted 6/26/2006 9:02 PM (GMT -6)   
I am so frustrated!!!  I just need to vent.
I was diagnosed with MS in 1997/1998 at the Mayo clinic.  I've had symptoms that just don't relate so much to MS but seem to fit in with Lyme Disease instead.  I'm not symptom surfing or hoping for the magical conversion from an incurable disease but I don't see what it would hurt to find out for sure.
Well, since I would have been infected with Lyme for so long, the silly little bacteria would most likely have morphed into different strains than they test for in the basic Lyme test (I've spoken with some Lyme support groups and gotten a plethera of information that has been very enlightening).  But here is the catch:  since the basic Lyme test came back negative, I can't get a referral to a clinic that would send the test to CA for a more extensive test.  Also, no one wants to challenge the "almighty Mayo Clinic" in suggesting that their diagnosis may be wrong.
So, here I sit.  I am staying on my Avonex and going to keep doing what I'm doing functioning from the perspective that I have MS but wouldn't that be unfortunate if it was actually Lyme disease all of this time and I have been going through all of this with the weakly shots and side effects and all the while treating the wrong illness?  From what I understand, Lyme and MS symptoms appear very similar.  I've also found out that Lyme tests can be extremely inaccurate and vary extensively from lab to lab.
I just got a call from my neuro today saying that he won't give me a referral because the lyme test he did came back negative so there is no justification for a referral to a different clinic and he refused to authorize the test at IGENIX in CA for the same reason.  My question to him was "But, what would it hurt?".  That didn't go over very well and I got a lecture about insurance fraud yada yada yada.  How is a does a referral equate to insurance fraud????
Has anyone else gone through this and if so, please give me any advice!  Thanks!!

Veteran Member

Date Joined Oct 2005
Total Posts : 4031
   Posted 6/27/2006 10:20 AM (GMT -6)   
I don't know much about Lyme disease or the symptoms of it.  But I do know that physicians have many rules and regulations that they now have to follow based on each insurance company and depending on your policy.  I would say if this is the course of testing you want done and your physician is basically refusing which it sounds like he is and citing your insurance as the reason, then call your insurance company and find out if you have any exclusions or limitations on your policy for this.  You also have the option of paying for it out of your own pocket and just going around your physician but if you have insurance that you pay for it there is no reason to do that.  All too often physicians forget that they work for you and not the bottom line.  Another thing is that if your insurance company requires you to have a referral to a specialist, you don't have to get that referral from your neurologist, you can get it from your primary care physician.  So if this is a possibility for you maybe go that route.  I wish you much luck...take care


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