What is going on?!?

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Nikki B.
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/12/2006 11:19 AM (GMT -7)   
Hi to everyone here at this website.  My name is Nikki and I am a 24 yr old active, fit female in Tennessee that is about to lose her mind if I dont get an answer to what is happening to me!  I'm sorry if this post is long, but I have to give the whole picture.
   It started two days before Halloween of 2005 with a horrible attack that landed me in the emergency room with what the doctors called a TIA (transient ischemic attack) and had no idea why.  The first off my syptoms was that I noticed I couldnt read the news ticker at the bottom of CNN before dinner even though I could see there was a picture there. I then accused my boyfriend of moving my hamburger from in front of me... but it was there, I just couldnt see it!  I could see the counter, but it was like pieces of my vision were gone (not spotty like looking into a bright light), just gone! 
    After that, I drove to work (I was a server at a local bar/pub) and by the time I got there 10 min. later, I could barely walk.  Then the numbness in my right arm started, from the shoulder down. Not tingly, just absolutely no feeling.  Then my voice went, it was like getting a novicain shot from the dentist, just under my jaw and my tongue.  I managed to get my b/f down there to take me to the hospital.  By then my vision was returning, the numbness was going away, but then the pain in my eyes started.  Horrible horrible pain.  I suffered a few migraines back when I was 16 from too strong of birth control pills, but this one was different... they shot me up with who knows what to knock me out (I recieved very little info from the docs). 
     While I was there at the hospital, I underwent CAT scans, MRI, MRA, TEE, numerous EKG's, and lots of blood work.  The only adnormalities were several lesions, spots on my CAT scan.      From there, I had three more similar attacks in that one week, only one being as severe as the first, landing me in the emergency room again, yet this time, the pain wasnt quite as bad.  In a course of a month, I had a total of 8 attacks, the symptoms gradually lessening.  I changed jobs to get out of the smoky air and less stress. I have been eating better and more regularly, sleeping more, trying to stay as active as I can, yet I still dont feel as good as I did before the attacks.  I get very lightheaded easily and I feel SO tired all the time no matter how much sleep I get.  I talked to my family and friends about it, yet they look at me like I am just trying to find something wrong.  I have seen a total of five different specialists and none of them seemed interested in finding out what was wrong with me.  The only thing they ruled out was that it wasnt a patent formen ovale (hole in heart).  They just turned me away to "find another specialist". Please if anyone has any advice as to how to proceed, let me know!  I cant deal with this everyday wondering when another attack is going to happen and whats causing it.  And to everyone that has gone through this, my heart goes out to you.  Thank you again.
Sincerely,
Nikki B.
 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/12/2006 11:41 AM (GMT -7)   

Since you're posting here, is your unasked question, "Is this MS?" 

It doesn't sound much like MS to me, but indeed something heart related, or vascular, or epilepsy, or stroke.  You say you've seen specialists -- what specialists? What have they suggested? What tests have you had run?

Sometimes you need to settle on ONE doctor, and keep going back to him/her with new episodes, or new problems, so that he can see a pattern over time, of what might be happening.  If in fact you had a TIA (or have had several of them), that would require you seeing a heart specialist, and be on medication to deal with those.

Give us more information, and maybe we can direct you to something more appropriate.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Nikki B.
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/13/2006 6:54 PM (GMT -7)   
Thank you for responding.  I am just searching for any information I can get.  Part of solving a puzzle is by eliminating pieces. And I am very confused on all this.  I went through this without insurance and I wonder if it had something to do with the mess I am about to tell you about.
     One of the most confusing things I have ever been through started basically, with the emergency doctors sending me to a neurologist, who then sent me to one cardiologist, who referred me to another cardiologist who evalutated all the info that the other doctors had collected (this took almost 7 weeks for all the requested documents to arrive in one place).  The last doctor I talked to was very (and I mean very!) eager to evalute the PFO that was seen in my heart, due to the new procedures on closing techniques.  Once he determined that the PFO was not the offending condition due to size and did not require closing, he literally didnt speak with us for more than five minutes and just nonchalantly told me to take Plavix "just in cause". When my father asked for how long, he said "oh, I dont know, try it for a year."  The only other abnormalities was the fact that two different nurses at two different hospitals looked at my EKG and said almost the same exact thing as, "hmm, they need to look at this, that doesnt seem right."  The other were several lesions in my CAT scan.
   And that was the last of my health care.  I wish i could tell you more, but I had to pry to get any information out of my own doctors.  I dont even remember the first two doctors from the ER, they shot me up with who knows what then just sent me home with nasuea medicine.  I had to call the next day to find out what they had told me the night before. None of the specialists could tell me anything about what happened or where to turn to.  I dont know who to go see, if I should bother, ect..... I have been left wondering why I have suffered apparent TIA's at the age of 24 and when I research myself the lesions bring me back to a possible attack brought on by MS.   Thats why I found this site.  I hope to find at least something in the way of guidance.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/13/2006 7:18 PM (GMT -7)   
Hey Nikki

I see u'r frustration and probably anger as well....something u have a good right to feel after what u've been thru. Don't give up!! Keep pushing...whether it's one doc u settle on or all the docs who collectively give u bits and pieces....get answers and don't stop til u do. These docs go home at night and don't live with this...they send u home either thinking they've helped u or not caring one way or another...but U'VE got to live with this...so keep pushing as u have been. I wish u all the best on u'r search. I too am still searching for an answer, but don't expect it quickly. As u've seen, this can all take a very long time and u may still have an even longer road ahead of u. Best wishes and all my prayers to u.

rhonda

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/14/2006 3:37 AM (GMT -7)   
You really need to find ONE doctor who you can trust (doesn't necessarily need to be a cardiologist...a good family physician can do this)
 
who will go over all your various records, including emergency visits, and see if there is one underlying cause to your situation.
 
Generally the lesions showing up on a CAT scan may not be the same sort of lesions that are related to having MS. And there are lots of reasons for lesions that show up in the body ("lesion" is another word for spot, scar, unusual spot, whatever...not a specific word to describe MS).  You don't mention whether you've had an MRI -- which might determine whether indeed there are lesions on your brain, and whether they occur in areas generally related to having MS, or in areas more indicative of a vascular disease.
 
Again, re-reading this thread, your symptoms and attacks don't sound a lot like MS.  While 24 is young for heart problems, it certainly can happen.  You really need to get to a doctor and have all this evaluated.  And don't hesitate to take a family member or friend with you, who can help you keep track of the doctor's advice and recommendations.  If you are indeed having TIA's, that can be a life-threatening situation, and ought not go untreated.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Nikki B.
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/14/2006 4:28 PM (GMT -7)   
Thank you all for your time in replying to my post.  I did have an MRI done, and then the one with the very cold dye injected in, MRI with contrast I think.  I was told that the test proved I didnt have any type of hemmoraghing going on. But no answer to the "dead spots" the second ER doctor saw on my CAT scan. I am in the process of looking up someone to be my primary physician.  Hopefully, I can find someone that I can stick with.  Thank you again for all your help!  It's good to know there are optimistic people out there in a pessimistic world!
 

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/21/2006 2:37 PM (GMT -7)   
Nikki hi,if you don't mind me asking what part of Tennessee are you in?I'am in Knoxville TN.I'am waiting for some test to come back to see if I have MS my self.I hopee you get some info as to what is going on.
Thanks
Curley......
a.k.a.Mela...........


Nikki B.
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/22/2006 7:33 PM (GMT -7)   
I'm in Knoxville too!  I would be grateful for any information you might have about doctors here in the area.  If it would be easier, my email is Pawntail@aol.com if you get a chance.  I want to ask as many questions as I can to be able to better understand what happened.  Thanks again for replying!
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