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Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 7/17/2006 6:26 PM (GMT -7)   
Hello all,
 
Just looking for opinons on some new things going on with my body, don't think I've read anyone else with anything like this so I don't know if it's related to MS.
 
I have found my knees sometimes dont seem to work for second every now and then when I take a step, I have never gone down or anything just stumbled a little. Some times my elbows or wrists seem equaly wrong.
 
I feel like there is a heating pad set to low on one side of my lower back and down the back of my thigh.
 
My hands will cramp on me some times only for a moment or two.
 
I understand that MS affects the nerves and so the muscles they are attached to but the joints?
 
Anyway, thanks in advance for any info anyone can offer, Know you are all in my thoughts even if I dont post much.
 
Take care all and God bless,
 
 -Pete
"If you don't talk to your cat about catnip who will" - CCL 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/17/2006 7:19 PM (GMT -7)   
Hi Pete,
Sounds like it could be spasticity.  Ask your doc about baclofen, it may really help.  Also, the hot sensation may be nerve related, sometimes neurontin or lyrica help with that.
 
I hope you have better days ahead!  Hang in there!  Take care!
Michelle ><>
 Smile, Smile, Smile!


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/18/2006 4:50 AM (GMT -7)   
As you note, the whole body is, after all, connected...but when you've got specific joint pain like that it's more likely something like arthritis (which can affect even younger people...my husband, without MS, started having kneed problems in his late 30's...). At any rate, probably want to mention it to your doctor when you next visit.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 7/22/2006 5:57 PM (GMT -7)   
Ok so it seems I am no good at paying attention to myself. lol! I suppose I just though it was my knees beacuse thats the piviot where it fails. As this week has worn on I am now limping noticably. The longer I am on my feet the worse it is.

Turns out my right leg is not responding the way it should. It is much harder to lift and I have noticed the right foot tips out when I left that leg. Wierd. Sometimes when I come down it is still tipped and it trips me. I also noticed I can not curl the three smallest toes on that foot.

Now the left leg is working right but it fees hot from my backside to the bottom of my foot. Not hot to the touch mind you but inside? I did notice while filling the tub the other day I could not tell the temperature of the water with the left foot but could with the right.

So both legs are revolting against me, just in different ways. I called my neros office and told the nurse. She talked to the doc and said call back if it changes and see them in a few weeks. If it gets much worse I may have to use a cane, it wears me out limping around all day and I am on my feet from 7-5:30 m-f.

Anyway thanks for the input shelly and uppity. just thought I'd update you.

Take care all - Pete


"If you don't talk to your cat about catnip who will" - CCL 

Post Edited (Papa_Bear) : 7/22/2006 7:01:24 PM (GMT-6)


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/22/2006 6:04 PM (GMT -7)   
Hi Pete,
Have they tested your testosterone level? Sometimes it helps males with MS. Go ahead and use the cane, there's no need in wearing yourself out more. Do talk to your doc about baclofen and other meds to help. Also, there are additional support meds you can take with the injection, be sure to ask about that, too.

Hang in there and keep us posted.
Michelle ><>
 A true friend is like support to a leaning wall.


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 7/23/2006 12:01 AM (GMT -7)   

Hi Pete,

    Goodness I'm sorry you are having problems.  Mike had similar problems to what you are going through now and once we convinced him to use the cane it really did make a difference for him.  The longer he was on his feet the worse things got and his feet turned a really deep shade of red and he experienced that hot feeling too that you are describing.  Please be careful in the tub too and check the temp with the parts of your body that aren't effected.  It can be very easy to scald yourself and not realize it.   I really do hope it gets better for you on their own, but if not your doc may be able to recommend some meds to try.  Thanks for checking in, it's always great to hear from you!

Kimber


 
Allow Healing Well to continue to help others, clink link for details

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/23/2006 5:29 AM (GMT -7)   

A cane can help a lot with mobility issues.  If you do need to start using one, do take the time to learn (from a physical therapist) how to use it properly -- which side you should have it on, how to step up and down steps, that sort of thing.  One session with a good PT is likely all you'll need, for now.

As for the heat sensitivity -- I can speak from painful experience how careful you need to be! I still have scars on my leg from when I forgot that I was leaning agains a hot oven, while stir-frying something on the oven top.  Ouch!  So take care!

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 7/24/2006 8:11 PM (GMT -7)   
You all are such a wonderful treasure of information!!
Thank you.

Now for my next set of questions. HA!

I know we rehash this every few months on this message board but I suppose I am still confused.

I'll try to keep this simple and I understand no one here is a Dr. and it is hard to diagnoses someone over the computer.

Does new symptoms, ie, my leg weakness indicate another exaserbation? <sp>

and

As my optic neritus cleared mostly up should I expect this to get better or once lost is it lost?

any way I value all of your opinions and peronal experiances.

God bless you all and take care - Pete
"If you don't talk to your cat about catnip who will" - CCL 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/24/2006 8:30 PM (GMT -7)   
Hi Pete,
The new symptoms may be a flare or they may be progression.  Men tend to progress more rapidly.  The optic neuritis usually continues to improve but in severe cases it may only clear to a point and you are left with the blurriness.  You need to report new symptoms to your doc.  Do keep a daily log or journal of any new symptoms or recurrences of old ones so your doc knows what's going on.
 
Did you ask about baclofen and neurontin?  The baclofen really does help with spasticity and spasms.
 
Take care!  Hope you are feeling better soon!
Michelle ><>
 A true friend is like support to a leaning wall.


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 7/25/2006 1:19 PM (GMT -7)   
Sometimes it can be confusing Pete. Have you been to the doctor recently or called to report all this new stuff going on? I forget what meds you take right now, they may need to adjust or try you on a new med to get symptoms under control. The leg weakness could be a flare, progression, or just a reaction to this terrible heat we are having right now. Michelle gave some good meds to ask your doc about and I really do hope you start to feel better soon. Keep us updated.

Kimber
 
Allow Healing Well to continue to help others, clink link for details

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/25/2006 1:47 PM (GMT -7)   

Hey, I'm real good at diagnosing over the computer! Just ask my detractors!! tongue

Serious, now:  I think it's always a good idea, particularly when you're relatively newly diagnosed, to call your doctor's office and at least report new symptoms, or a particularly troublesome flare-up of "old" symptoms.  He may or may not want to have you come in...but at least it should be noted in your records that you're having a problem.

Over time, you'll learn how MS is specifically affecting you, and what external influences will specifically affect you.  Like - -it's way hot today, and I had to be out shopping for groceries.  A 20 minute ride to the grocery store -- and 20 minutes back -- and I've got this awful back and shoulder spasm.  Now I know it's related to the MS, know it's related to being overheated, and it'll pass.  In the meantime, it's real painful, and annoying.  Should I call my doctor?

Well..if I were newly diagnosed, and this was the first time, or first few times it happened -- I'd likely call, and report it.  Now I just grouse about it, wince when I have to move, and hope it'll go away.

 

As for the vision thing -- sometimes that'll continue to clear up, over a period of months.  But unfortunately sometimes it won't. Or, like me -- when I get overheated, and/or overtired, and/or..sometimes, "just because", my vision will get blurry, and I'll describe it as "my eyes have gone wonky".  Generally it'll clear up, but sometimes it takes several days, or a week.  Again, if I were newly diagnosed, I'd be calling.  But now, I just sort of let it ride.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Papa_Bear
Regular Member


Date Joined Feb 2006
Total Posts : 93
   Posted 7/27/2006 8:28 PM (GMT -7)   
Had an appointment today to see my nero, so of course what happens?.........

My leg starts working better yesterday!

Almost walking normal now. So I see him. Tell him all about what was happening, how I had to use a cane, ect, ect. He says may have been a new episode, may have been the plaque in my neck on the first mri flairing up. Probobly should do a new mri to check.

He said see him in month and call sooner if I have more problems. If it was a new episode that would make three in the year since I was diagnosed, counting the one that lead to diagnoses.

If it was a new episode we may need to consider that the Betaseron is not working for me, he may want to switch me to tyserbia <sp> . Also If I want a second opinion I may want to see some MS specialist in kansas city.

So there is the update, Good news I suppose because I am walking better.

God bless all, take care - Pete
"If you don't talk to your cat about catnip who will" - CCL 

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