Hi everyone I am from the land down under Australia (Gold Coast). I am 48 divorced and jobless due to illness and feel about
Finally I have found a good forum with heaps of info and others who are rowing the same boat! I really just need to vent and to talk to someone who knows what it is like as I am all alone, no family and nobody that understands what this is like. Everyone thinks I am just plain lazy.
I have been unwell for a number of years and ended up in the Neurology Department recently due to chronic unexplained facial pain. The Neurologist ordered an MRI which showed numerous lesions in my brain and wanted to follow up with more blood tests and a Lumbar Puncture (Spinal Tap). He did not tell me what he thought might be wrong so I did as much research on the net before I went as I also have degenerative disc disease and a very painful back and I was concerned how the LP would impact on my back pain.
I rang the clinic and begged them to sedate me as I know I don't cope with this type of thing too well. (Walked out of an operating theatre once because the anaesthetist wanted to give me an epidural. I completely fell to bits!)
Turned up on time for the Lumbar Puncture to be told there were no beds so I would have to wait. That was at 1pm. At 2.30 I was sent down to the day surgery department and told to change. I sat and sat and sat. At about
4.30pm some unknown Doctor introduced herself and said she would be doing the procedure. Apparently they had forgotten I was there and she knew nothing about
me what so ever only a brief discussion with the Neurologist who I was led to believe was to do the procedure. (He must have had something more interesting to do)
She said "You know that the Neurologist wants this done to confirm that you have Multiple Sclerosis!!"
(Gee thanks for that bedside diagnosis!)
I asked about
sedation and she said she couldn't arrange it and not to worry I would be fine, doesn't hurt much etc etc. A nurse in attendence said she could make a few calls and may be able to arrange it but I think the Doc wanted to go home, more important than me of course! The day clinic closes at 6pm so there would be nobody to monitor me and there still were no beds available, I was sitting in a chair.
"I'll talk you through it she said. You'll be fine, you won't feel any pain, only the local anaesthetic"
I guess you can imagine what happened next. Completely lost it in the O.R. cried like a baby. Well, I have never had pain like that in my life! I've had some fairly nasty ops over the years and had natural childbirth but this was sheer hell and the pain unexplainable. Gave me heaps of local which didn't work at all. The pain shot first down my right leg, then down my left leg then through my back to my stomach and I screamed and screamed and begged her to stop. I will never let anyone attempt that ever again without being out to it. I don't want to scare anyone and I know that probably most people don't have any trouble at all. I told her about
my disc disease and took the MRI of that with me, she didn't even look at it.
Now two days later I have shooting pain down both legs blurry vision and a foul headache. I feel a bit dizzy and I am physically exhausted and have to keep lying down because I also feel like vomiting. I am too scared to go back there in case something else goes wrong. Has anyone had a similar experience and does the pain in your legs get better. Definitely sciatic nerve pain, as I have had this for a long time in my left leg due to disc disease and have just recently got it under control. Bang goes all those years of physio and pilates!
I just can't stop crying! I wouldn't wish this on my worst enemy! I haven't come to terms with the fact that I have MS let alone cope with the dramatic alteration this is going to have on the rest of my life. I am just so terrified and scared!