Yours is the first post I have read and replied to on this site. I just wanted you to know that you are not alone in what you are going through. In fact, if I didn't know better, I could have sworn that I wrote your post myself.
I've had ever worsening symptoms similar to yours for years, including extreme fatigue and tingling and numbness in my arms, hands, legs, feet, face, and lower lip and chin. I've had severe headaches, cognitive problems such as slow word recall and substituting the wrong word totally, forgetfulness, and confusion. I've also had ringing in both ears, vision problems, and hot spots on my legs. about two months ago, I suddenly developed tremors, along with even more extreme fatigue, painful muscle spasms, slurred speech, and then noticed that I no longer sweat, even in the most extreme heat.
I consulted a neurologist several weeks ago, and during the neuro exam, the doctor noted lateral nystagmus, dysarthria, slow reflex response in my ankles, and a present Babinski reflex in my left foot. The doctor strongly suspected MS and sent me for testing.
I've had the usual blood tests ruling out RA, B12 deficiency, Lyme disease, diabetes, etc. I had three evoked potential tests, and an MRI to try to diagnose whatever is going on with me. All except one of the sensory evoked potentials tests came back normal. When the results came back, the neurologist had the nurse call me and tell me that everything was normal, I didn't have MS, and there was nothing else he could do and I didn't need to see him again. End of conversation. No mention as to any follow-up for my symptoms, no mention of the abnormal evoked potential in my left leg or present Babinski reflex or what they might mean, no help at all.
Meanwhile, I feel horrible most of the time, can barely function enough to go to work or even get out of bed. I sent my primary care physician a list of these and other symptoms and asked for help, but he didn't even respond other than to schedule me a second opinion with another neurologist. And just what good is that going to do?
I'm about at the end of my rope! I just want to feel better so I can live my life.
So, while I can't help you or give you any answers, I can suffer along with you and pray that we both get help and answers soon.
Post Edited (Shashi) : 7/22/2006 10:29:56 AM (GMT-6)