I had wrote a earlier post.....about Spinal taps sucking and the lesions that MRI showed on there. I did what uppitycats said and I called my Rheumy and faxed over the MRI's to him...which included the one from 5 months ago and the one from last month.
The rheumy called me last night around 8pm (I left my phone in my purse because I never thought a dr would call so late)
His voice mail message stated " This is ----, I was calling ....A-to see how you were feeling and B--to tell you I am extremely concerned about the MRI results that you sent to me. I need to know what the neuro told you about regarding the findings on this. He said that he wanted to hear from me before friday this week to discuss the findings."
well, that kind of scared me! To call me at 8pm wasn't normally the thing that doctors do even though he is a awesome dr so I shouldn't probably be concerned of that...I should appreciate that he took the time to call me at all.
I tried calling back today but I had to leave a voicemail at his nurses line with a call back number...so now I'm in limbo
I know with the spinal test negative, I don't think that's still a issue,or could it be? The MRI stated "dmelynation is likely" and "vasculitis is also likely" like the post before. I had 1 to 2 lesions on last scan and now I have 9 lesions in 5 month period. I wouldn't think that even MS grows probably that much in only a short time.
My symptoms are similiar to just about everything...for the last few months I had "burning" stinging pains in face....and upper arms. It feels similiar to a bad sunburn, but I've never heard anyone mention this in any disease or disorder. Menopause is the only thing I can find when I research it and I'm 28 so that's pretty much ruled out :)
Just wondering what everyone's take on this....I know I will have to hear what the dr says in the end anyway but it would useful on what ya'll have to say as well.