I'm not sure about the dysautonomia dx. I have been on the new meds since right after I last posted over a month ago and they are not helping at all. My symptoms are actually getting worse.
I have an appt on monday to get a VEP test done and I see the neuro on the 27th. I have called my rheumy about 3 times in the last month and I dont think she knows what to do to help. Thats why she scheduled the appt to see the neuro.
I have been having blurred vision, muscle weakness, my balance is worse, I have been falling, I get vibrations sensations in either one leg, one arm or my head.., my feet and legs burn at night when I lay down, I have been having urinary urgency, loosing bladder control or sometimes hesitate..., my bowel movements have changed, Swallowing problems the last few days, slow word recall, memory loss is worse and more forgetful, parts of my body get cold at times, I still have the tremors, but have just found out this morning that they stop when I lay down for some reason, more headaches, pain in the back of my neck and lower back.
I know that was alot, but I just wanted to let you all know what has been going on since I last posted. I hope to finally get some type of dx underway when I have the VEP and see the neuro. I will let you know what I find out.
Tks for all the help you have been giving me. You all are great and caring!! Take care and you are all in my thoughts and prayers.
Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
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