Good days/Bad Days - Is this normal?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Shashi
Regular Member


Date Joined Jul 2006
Total Posts : 156
   Posted 8/7/2006 8:53 PM (GMT -7)   
I haven't been diagnosed yet, but was wondering about something. I seem to have good days and bad days, though the bad days far exceed the good days. I think in the past 8 weeks, I can probably count on one hand the number of days when I have actually felt good.

I'll have many days when my muscles are in spasms really bad and are really painful, then I'll have days when there are no spasms. I'll also have days when I'm exhausted, and other days when I'm fine (though getting out in the heat or taking a hot bath or shower can pull me back down again.) Again, some days I'll have bad tremors, and other days, I barely notice a tremor (and usually all these things are happening at once.)
 
For instance, today I felt so good - almost no tremors, no spasms, very little fatigue, and I almost wondered if I have imagined everything that's been happening for the past few months.  But I know this may not last - I know that tomorrow or the next day I could wake up miserable again and be that way for weeks.

Is this normal for MS?

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/8/2006 4:17 AM (GMT -7)   
It's normal for MS, particularly in the early stages -- which is, remember, a relapsing-remitting disease, which means that symptoms can come and go, and sometimes disappear almost entirely.

But there are lots of diseases and disorders that are relapsing-remitting, or which have symptoms that can come and go, and until you're diagnosed for sure, it would only be a guess on your..and our..part as to whether this is MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Shashi
Regular Member


Date Joined Jul 2006
Total Posts : 156
   Posted 8/8/2006 7:31 PM (GMT -7)   
Well, wouldn't you know, after having such a good day yesterday, today was the pits!! I've had severe muscle spasms all day that my normal Flexaril didn't help. So I took a half a Zanaflex (2 mg.) and it about knocked me out. We were out trying to get some errands done and I wasn't worth a dime. I could barely walk and the fatigue was overwhelming!

I had a meltdown on my husband in the parking lot at Walmart because he keeps pushing me to keep going when I don't feel like well. (He's frustrated, I'm frustrated, we're both frustrated.) He thinks I'm crazy because I started having these problems not long after we got married. Since the first neurologist and my family doctor can't figure out what is wrong with me, he thinks that there is nothing wrong with me and that it's all in my head. I just want to cry (and did.)

I have an appointment with a second neurologist tomorrow. I hope that someone can figure out what's going on. I'm sick and tired of being sick and tired!

Post Edited (Shashi) : 8/8/2006 8:37:17 PM (GMT-6)


TeriG
New Member


Date Joined Nov 2012
Total Posts : 3
   Posted 11/18/2012 7:23 AM (GMT -7)   
hi there! so happy and yet miserable to hear you have exactly the same situation as myself...including a pushy husband! its so awful i know how you are feeling physically and emotionally. i am seeing a neurologist end of the month, i saw one 4 years ago and he said i was fine, but my symptoms are not just pain any more i can't walk some days and the heat is unbearable and we just bought a condo in florida....how nuts is this, thank god for air condidioning...my email address is terig@ymail.com i'd love to hear from you...i am not good at this computer stuff i may never find your message again...i am 57 feel like 80!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 11/18/2012 2:55 PM (GMT -7)   
Teri,

You are posting to very old threads (2006). You might not receive a response from the original author. Hang in there. Keep posting. Ask any questions you may have.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Singingsupernurse
Regular Member


Date Joined May 2012
Total Posts : 118
   Posted 11/20/2012 5:04 PM (GMT -7)   
Teri, Gretchen: Ditto. I am so sick and tired of being sick and tired. Trying to hide my condition from employers, but having to be out either d/t MS or the crohns. They are Ok with it for awhile, but then they get rid of me for one reason or another. I have to start another job and the side of my face is in sharp pain and my right eye is more blurry than usual. I am so sick of this...I won't go into the crohns.*sigh*
Those that do not learn from history are doomed to repeat it

TeriG
New Member


Date Joined Nov 2012
Total Posts : 3
   Posted 11/21/2012 4:13 PM (GMT -7)   
hi sashi...boy do i feel your fraustration!....i have not yet being diagnoses with  ms yet..will see the neurologist next week for the first time...everything you describe i feel too, i only get tremors when i get cougthing chest pain like symptoms....but i am itchy all over when it is hot, my left left gives out so that i have to use a cane sometimes, my ankles and calf are tight and so is my right buttock...i hav hearing loss in both ears, and balance issues.....tried all of the rothberg balance test with my eyes open and closed and i fall over in both instances...have you had the balance tests done wityh your neruologisyt? i hope mine does it so i can prove my unsteadiness, i had sarcoid benign tumor in my right orbit in 2006, now i wonder if it was the beginning of ms?
i hope i find your poste again....TG
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 6:32 AM (GMT -7)
There are a total of 2,903,920 posts in 318,696 threads.
View Active Threads


Who's Online
This forum has 158112 registered members. Please welcome our newest member, dawdkawkw1.
287 Guest(s), 6 Registered Member(s) are currently online.  Details
John_TX, PeppermintTea, Paxton, Mergirl, testuser1234, mr bill