Posted 8/8/2006 12:38 PM (GMT -6)
I was just like you. Exhaustion was killing me. It was dangerous just driving home every night, much less if I tried to go anywhere or do anything after I got home. My career was crumbling before my eyes. I did ok and still do, in the mornings. But the afternoons were terrible. As my symptoms got worse, the exhaustion took me down. Depression set in and I ended up in place I never want to go again. I just could not fight it. However, my GP stepped in when he called me for an update to the MS investigation I was going through at the time, and knew something was wrong. He gave me a script of Provigil and 3-4 days later I was out of bed and dealing with symptoms and doctors again. That was when I too, was a limbolander. Now that I am Dx'd I still have my Provigil. I don't use it everyday any more. You adapt as time goes by. You change your habits, your work load, and other things to take advantage of the time you can function better. In my case, the mornings. As the afternoon comes on, I usually have enough energy stored to get by and get home. I still have a problem after about 8pm everyday. The days that catch up to me, I have my Provigil to lean on and it has always worked for me. They are always in my briefcase and my car.
Exhaustion is the number one MS problem that will take you down hard. It leaves you vulnerable to the symptoms and the depression of this crumby disease. Everyday that you deal with it, it will take you down more...until you just can't force yourself out of bed, out of the house or to do anything.
I was told when I was going through it, by the members of this forum and others, that you don't need a Neurologist to help you with exhaustion. I will give you the same advice. Do somthing about it now and you will miss some of the pitfalls I fell into. Tell a doctor that you are being investigated for MS and you are having such severe exhaustion, that you are scarred to drive home everynight, that you cannot function at work and may lose your job, and it is so bad that you may hurt yourself just going down stairs. Make them understand. Ask about Provigil or something similar.
Do this, and you will be better equipped to spend time with your family, get your work done, and finally...have the strength to deal with symptoms and other effects that you may face down the road.
I do still get exhausted and I am lucky enough to take a friday or monday off every few weeks to have a 3 day weekend to just kick back and rest. This time, we my family's blessing, is just my time to rest...because even with Med's like Provigil, the disease itself wears me down.
Take some steps now to get hold of your exhaustion, not only to spend time with your family.....but to save your life. Driving while exhausted is the number one cause of accidents, passing drug drivers, in this country. Your family won't spend time with you if you are dead.