Lumbar Puncture #2

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Regular Member

Date Joined Jul 2006
Total Posts : 95
   Posted 8/16/2006 9:23 PM (GMT -6)   
Found out today that I am get a second attempt at a lumbar puncture, this time in a private hospital which my neuro arranged for a nominal fee. An actual Anaesthetist will do the procedure and knock me out. Phew, what a relief that I won't have to go through the agony of that again wide awake!
Would you believe that at the public hospital "The Department" ( I suspect he means the Neurology Department ) is being renovated and I would not be able to get an appointment until mid 2007! Will have this done next Tuesday morning so I hope that this will be the last diagnostic test for a while. I am really sick of Doctors appointments, I've been to so many! My blood pressure is still soaring 171 over 104 so my Doc has started me on another drug as well as the ones I was already taking. I have to go for tests in two weeks as apparently the new drug can affect the potassium levels in your blood. They will check my bp then. My Doc has gone to the USA to see her sister, lucky thing! She leaves today.
I was lying in bed Sunday and needed to get up and I just couldn't do it. Really freaked me right out the pain in my body was overwhelming and I was thinking of going to hospital it was that bad. Anyway, after 10 minutes the pain stopped and I was ok. Does anyone else have this problem?
I also forget and lose things.This week so far, forgot and missed a Doctors appointment, lost my mobile phone, paperwork on my medical condition, and tossed out a brand new packet of millett seed in the rubbish bin. (I have several birds as pets). I also misplaced some of my bangles which I had taken off before I went to hospital last time. It took me a full week to find them, I had hidden them! I spent two days looking for my phone, it was in the clean clothes basket! Why I put it there I can't remember. I forget what I am doing and why at least 5 times a day. Makes me feel like a real idiot! How does everyone cope? I have to write things down which I do all the time now like the grocery list, then, heaven forbid I forget to take the list with me! I've also noticed that my spelling ability is slowly but surely getting worse. I used to be good at English, loved reading, crosswords etc. Now I struggle with the spelling of words or can't think of a word to use. Sometimes I think of one word and say another or can't remember what to say. Does anyone else get these symptoms? I also get leg and arm feeling extremely cold. I have noticed this happening a lot. Affects my left side. My arm and leg are really cold to the touch. Unpleasant feeling but not that bad. This happened to me in the hospital when I was in for my skin condition and they thought I was having a heart attack. My heart has checked out ok as well as thyroid and kidneys so I'm thinking that this may have been my first attack. My vision went really fuzzy and I had this flickering in my right eye. It took me a good day to get over whatever it was. The nurses said I went really pale. I was short of breath and had pain in my chest.
Thinking of you all
Hope everyone is keeping well


Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 8/16/2006 10:05 PM (GMT -6)   
Hey Cocoa

I hope u'r lp goes well and u get some answers soon. I have had some of the symptoms u describe here and for me they come and go. One of my biggest probs is the memory...or lack thereof. The times i'm having probs with it i can't remember parts of a conv as the conv is going on...but it's not a consistant thing. Once it begins to get better, it will eventually get much better and i'm feeling my old self again. Then out of the blue i'll start to forget stupid things again. I was asked to call someone at my church about two weeks ago...they gave me the number and i said it over and over out loud and then had my daughter memorize it as well. Before i left i was asked if i remembered the number and i did!!!!...but couldn't remember why i was supposed to call her. :( O well....half is better than none! At those times i seem to have some prob with words as well. Not big probs, just using the wrong word or stumbling over the word as i try to say it. It's frustrating for sure, but for me it gets better as well. I hope u get to that place...where it eases up and u get some relief. I'm told that if it is ms, it's possibly a resident symptom so i take comfort in that fact that mine does come and go.

Please come back and let us know how u'r lp goes and how u'r doing. Thanks for letting us know how u are tonight as well.


Regular Member

Date Joined Jul 2006
Total Posts : 95
   Posted 8/17/2006 4:53 AM (GMT -6)   
Thanks for the reply.
Don't you feel crazy when you think one thing then say another or forget completely what you were talking about? This happens to me every day along with all the other stuff! :( So frustrating, you know what you mean but it doesn't come out of your mouth the same!
I'll let you know the outcome, could be a few weeks away.
Take care
hugs everyone

Regular Member

Date Joined Jun 2006
Total Posts : 316
   Posted 8/17/2006 5:03 PM (GMT -6)   

You should really be tested PROPERLY for Lyme Disease if you haven't already. I can't begin to tell you how much your symptoms sound like Lyme. The memory deal, putting things in the wrong place and spelling difficulties...ALL of them. I've read your previous posts and thought the same, but I am getting worn down with trying to convince people they need to not go down the MS road before they've exhausted the Lyme one. Lyme can mimic MS even down to the lesions on the brain.

PLEASE check it out. If you want more info, please post on the Lyme forum. We have several people there that were misdiagnosed with MS.

I hope you will really consider this. Good luck!

Regular Member

Date Joined Jul 2006
Total Posts : 95
   Posted 8/20/2006 7:02 PM (GMT -6)   

Hi and thanks for your input. I will ask the question when I speak again to my Neurologist.
I will study up on the disease so I know what I am talking about. Tomorrow is LP Day, and I am starting to feel that real uneasy feeling like TERROR but I will not remember thankfully. I'll report back with the findings as soon as I know anything. Thankfully I won't have to wait until the middle of next year!!!
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