Learned wisdom for newbies and those in limboland

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shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/17/2006 6:49 PM (GMT -7)   
Hi All,
I thought it would be neat for those of us who have been diagnosed to list some helpful tips and advice for those who are newly diagnosed or are searching for answers.  Please share your own helpful lists!
 
1.Be proactive with your healthcare
2.Remember you have every right to ask doc about new meds and/or tests
3.Call your doc if something new or frightening develops
4.Keep a list/diary of symptoms
5.Ask for help when needed
6.Accept help when offered
 
Now the rest of you need to add to all these things! :-)
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/17/2006 6:59 PM (GMT -7)   
WOHOOO MICHELLE!! Good thread! I will be watching and reading closely!

rhonda

got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 8/18/2006 6:04 AM (GMT -7)   
shellypoo said...
Hi All,
I thought it would be neat for those of us who have been diagnosed to list some helpful tips and advice for those who are newly diagnosed or are searching for answers.  Please share your own helpful lists!
 
1.Be proactive with your healthcare
2.Remember you have every right to ask doc about new meds and/or tests
3.Call your doc if something new or frightening develops
4.Keep a list/diary of symptoms
5.Ask for help when needed
6.Accept help when offered
 
Now the rest of you need to add to all these things! :-)

I would like to add something I am very guilty of not doing myself,Make sure to ask for all records and copy's of mri's and ect. to keep for your own personnel records.Keep a file of your very own.This may come in handy in the future as you are going thru limboland.
 
 

Just when I was getting used to yesterday......Along came today.
 
             
~~~LIFE~~~

Post Edited (lifewithms) : 8/18/2006 7:15:56 AM (GMT-6)


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 8/18/2006 7:50 AM (GMT -7)   
...very good advice....
 
I'd like to add that never forget that YOU are the customer...
 
And if you are given some advice you do not understand, ask Dr. to repeat....and explain further....and if Dr. does not have time to explain to you, ask them to send in someone who CAN explain to your satisfaction.
 
Remember....YOU are the customer...John

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/18/2006 9:56 AM (GMT -7)   
I thought of another thing to remember:
Don't be embarrassed to ask about bowel/bladder problems and also sexual troubles. They all go along with MS.
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/22/2006 5:27 AM (GMT -7)   
I know all the rest of you have some advice and words of wisdom for the newbies and limbo-landers!
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


lmb
Regular Member


Date Joined Aug 2006
Total Posts : 48
   Posted 8/22/2006 7:29 AM (GMT -7)   
ty guys i have been doing those things but i wasnt at first so i think it is good to tell people those things b/c u dont know what to do at first and its helpful to have that info so bless u guys for ur nice advice
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