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hairball
New Member


Date Joined Aug 2006
Total Posts : 14
   Posted 8/22/2006 8:27 AM (GMT -7)   
both my parents and my uncle have ms. i have been to a nero with some eye problums i started medrol for 10 days to help with the eye problem , iv had to differnt eppesods with my eye . one in each eye.my nero wants me to start AVONEX , iv read lots on it so i know a lot about it but i havent talked to anybody who has or is taken it. i just kinda want to know how everyone likes it or if there is anything that you can tell me about it. that is not in the books. its not been a big shock to me sicne iv been around it for 20 years, any opinens whould be great.

thanks everyone ithis is my first post here


jerry

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/22/2006 8:55 AM (GMT -7)   
Hi Jerry,
Welcome to HW!  I'm sorry you are having trouble.  I'm assuming you have been diagnosed with MS?  Is the eye pain your only symptom?  Have you had a brain MRI etc...
 
I am on Avonex and have been for 4 months.  It is once a week in the muscle.  It can take some getting used to giving yourself the injections.  I have my hubby give me mine.  You can experience flu like side effects the night of and the day after your shot.  It is a good drug and I intend to stay on it unless I can't tolerate it.
 
Take care and please keep us posted. :-)
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


hairball
New Member


Date Joined Aug 2006
Total Posts : 14
   Posted 8/22/2006 9:00 AM (GMT -7)   
hi no pain now i did at first but not much. jsut blury like looking thew a screen . my doc has not said it is MS to me but i think i am sure it is benig that iv had 2 differnt atackks one in each eye with time inbetween , MRI showed 2 spots . do you take your shots in the mornig or at bedtime

jerry

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/22/2006 10:59 AM (GMT -7)   
Jerry,
I take my shot between 4 and 5 pm.  I don't like to take it right before bed because I get some bad side effects and they wake me up if I'm sleeping.  This way, I can take extra meds when they start and then go to bed.  I'm unusual with my side effects, most folks have minimal to no side effects after they've been on it a couple of months.
Good luck!
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/22/2006 11:23 AM (GMT -7)   

It sounds like you've probably had optic neuritis...that the doctor treated you with steroids, and it improved?  And then the lesions on your brain are pretty much a confirmation that you have MS.

Lots of us here are on one of the interferon drugs. Avonex is one, then there is Betaseron and Rebif.  Copaxone is another drug prescribed to treat MS as well.  If you don't do well on one, there are choices you can consider.

The flu-like symptoms that they talk about is the primary side effect. What generally happens is, about 4 hours after you've injected, you'll develop a fever, sometimes a headache, body ache, chills -- like the flu. 

I'm not on Avonex -- I inject Betaseron -- but the effects are very similar.  What I've done is this: about an hour before injecting, I'll take ibuprofen. (Any of the anti-inflammatories -- Tylenol, ibuprofen, even aspirin..will help).  Then do the injection, and head off to bed.  When I first started, I'd wake up in the night with the flu-like symptoms, take two more ibuprofen, and go back to sleep.  By morning, I'd wak with maybe a slight headache, but nothing that was unmanageable. Betaseron is an every-other-day injection, so this would happen every other day, for the first couple of months, then tapered off.

Now, 13 years later, I still take the ibuprofen before injecting, and still inject before going to bed, but rarely have any problems after that.

There is increasing evidence that these drugs do help to slow down the course of the disease for many of us.  I see you have folks in your family who also have MS.  They're older than you, of course, so may well not have had the opportunity to use any of these drugs (they've only been around for 15 years or so).  I hope your experience with MS is much less troublesome than theirs!


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


hairball
New Member


Date Joined Aug 2006
Total Posts : 14
   Posted 8/22/2006 12:42 PM (GMT -7)   
my mom was dx in 85 she is in a wheel chair my dad was dx in 94 he has passed do to other comp. my uncle was dx in 96 none of them has had any of the interfuon drugs. uncle and dad have both had cemo. in chicgo my unlce still get around . i am 38 so ive been arond this for a long time. my wife is very supportive as we have been married for ten year. thanks for you replys . im going to get started on the avonex ASAP. my percription plan covers most of it. so im very lucky there. yes it is optic nerites. thanks for the info


jerry scool

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/22/2006 2:44 PM (GMT -7)   
Hi Jerry,

Just wanted to pop in and welcome you to the forum. I hope you do well on the Avonex and if we can be of any help please let us know.
 
Allow Healing Well to continue to help others, clink link for details

my5cats
Regular Member


Date Joined Dec 2005
Total Posts : 67
   Posted 8/22/2006 8:06 PM (GMT -7)   
Hi Jerry,  I have been taking Avonex since December 2005.  It was a little rough at first, but it is much better now.  I too make sure that I take Advil a little while before injecting or I pay for it.  It is amazing how much the Advil does to stave off the side effects.  I do my shot on Saturdays at about noon now.  I did start out doing it at night though.  Now I find that it seems to have fewer side effects and I seem to feel better in the next couple of days if I do it earlier on Saturday.  I have found that there are not a lot of people taking Avonex here, but there are a whole lot of people who are supportive no matter which of the drugs you choose to use.  This site is what gets me through a lot of my bad days!  Good luck and just be prepared to not feel too hot at first, but it really does get better.  The needle is scary, but I find that if it is too tough then I take a Xanax 20 - 30 minutes before the injection and I am fine.  Be sure to hold a cold pack on the injection site until it is numb. And don't forget that Advil, Tylenol or some other of the same sort of otc medication.  It makes all the difference in the world!  Let us know how you do and if you have any questions.
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