thank you for your supportive reply in regards to my post to shellypoo yesterday.... i think it is refreshing to see educated people respond accordingly when it comes to the future health of someone with a chronic illness.
as i mentioned earlier, i post on various message boards and have seen numerous people encouraged to seek alternative diagnosis to the primary diagnosis their certified physician has given them. i realize people could have coexisting conditions, and many do, however, it saddens me to see that anyone that thinks outside of any "box" is ostracized as being mean and unkind because they don't join forces with the marjority in thinking that out of pocket doctor visits, and unnecessary antibiotics is someday going to cure them. And they continue this pattern for years on end thinking that "getting worse" is actually a sign of getting better.
I know many people who have had lyme. they have been treated by their primary care physicians and have gotten better, because they have had lyme disease. they have not condemmned every healthcare professional in the USA saying "they don't know what they're talking about" and proceeded to pay hundred of dollars for numerous negative test results and continued to assume that they have a disease process that they do not.
I personally think that if lyme was pandemic as people claim, health insurance companies, doctors, specailists, labs would all be on the band wagon to make a buck. it would not be a clandestine list of doctors that people could only secretly email you treating this pandemic.
so thank you for understanding my point of view, not condemming me for thinking differently. i think people on any ms board i've ever lurked on are informative, helpful and supportive, i would never say they go to other boards telling people, hey it could be MS, here are a list of symptoms,