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Regular Member

Date Joined Aug 2006
Total Posts : 28
   Posted 8/27/2006 3:22 PM (GMT -6)   
thank you for your supportive reply in regards to my post to shellypoo yesterday....  i think it is refreshing to see educated people respond accordingly when it comes to the future health of someone with a chronic illness.
as i mentioned earlier, i post on various message boards and have seen numerous people encouraged to seek alternative diagnosis to the primary diagnosis their certified physician has given them.  i realize people could have coexisting conditions, and many do, however, it saddens me to see that anyone that thinks outside of any "box" is ostracized as being mean and unkind because they don't join forces with the marjority in thinking that out of pocket doctor visits, and unnecessary antibiotics is someday going to cure them.  And they continue this pattern for years on end thinking that "getting worse" is actually a sign of getting better.
I know many people who have had lyme.  they have been treated by their primary care physicians and have gotten better, because they have had lyme disease.  they have not condemmned every healthcare professional in the USA saying "they don't know what they're talking about"  and proceeded to pay hundred of dollars for numerous negative test results and continued to assume that they have a disease process that they do not.
I personally think that if lyme was pandemic as people claim, health insurance companies, doctors, specailists, labs would all be on the band wagon to make a buck.  it would not be a clandestine list of doctors that people could only secretly email you treating this pandemic. 
so thank you for understanding my point of view, not condemming me for thinking differently.  i think people on any ms board i've ever lurked on are informative, helpful and supportive, i would never say they go to other boards telling people, hey it could be MS, here are a list of symptoms,

Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 8/27/2006 4:32 PM (GMT -6)   
Thanks Karen,
I appreciate your post on the lyme board as well. I know this all can get touchy. I hope people with MS will feel comfortable with their diagnosis and if not and they feel they are mis-diagnosed then to pursue lyme or something else.

I hope this contraversy ends on the MS forum, we are really a very caring group! I'm sorry if I caused anyone any pain in my post of confusion!
Michelle ><>
Don't be so busy doing good
that you neglect to do what's right!

Regular Member

Date Joined Sep 2004
Total Posts : 235
   Posted 8/28/2006 5:08 PM (GMT -6)   

Karen thanks so much for this post.  I must say that when I read your post I couldn't have put it better myself.  You were to the point and spoke on behalf of someone who HAS been there.  Personally I know very little about Lyme.  What I do however have is faith in our medical field in this country and know that if Lyme was pandemic our Gov't wouldn't sit by casually and allow all of these people to suffer needlessly.  On the contrary, we live in a society where research and technology are on our side and advancements in medicine is unprecedented.  And if, as Lyme members would have you believe, there were only ONE company that could guarantee accurate results for a Lyme test, then we should own stock in this Co. 

I don't appreciate people who like to stir up controversy and that is what they are doing.  They profess to only want to help and that their common cause is to educate those who need their help.  Anyone who reads their posts will come to find that those statements are far from the truth.  They treat those of us with MS like we are bumbling idiots all too ready and happy to buy into a dx's of MS.  And their power in numbers mentality is totally unacceptable.  The moment they see Uppity post they move in for the kill rallying 3, 4 or 5 people to respond and that is absurd and should not be tolerated. 

Thanks again for your post and for clarifying this whole situation for those that are new to this board and at this point are probably wanting to run the other way.





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