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Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 8/27/2006 5:16 PM (GMT -6)   
I'm Jen..this is my first post here. I'm over @ the Lyme forum usually. I don't have a dx of any kind though.
I actually had a question about something I saw in one of your posts. You said that you've seen a lot of young women presenting with MS like symptoms that aren't taking advantage of today's medical advances...
I was wondering if you meant on the Lyme forum or was it somewhere else? I'm trying to get a dx of either MS or Lyme and to be honest I have no idea which it could be. Right now, my main complaints are horrible brain fog and dizziness/balance issues. Occasionally I get muscle aches in my wrists and ankles...I don't remember a tick bite or a rash of any kind. I do have two nonspecific white matter lesions but have yet to get any direction from an MS Specialist. I keep hearing "time will tell."
Anyhow, just wanted to get some more insight as to what symptoms you were talking about. Actually, I was quite nervous that you had read a post of mine and were referring to that! My anxiety about MS is just through the roof.
Thanks in advance :)
"When you come to edge of all the light that you know, and are being forced to step out into the darkness of the unknown, faith is knowing that one of two things will happen: either there will be something solid for you stand on...or you will be taught to fly..."

Regular Member

Date Joined Jul 2006
Total Posts : 95
   Posted 8/27/2006 8:28 PM (GMT -6)   
Hi Jen,
I notice that you have a MS Specialist on your case which is great.
I am in limbo land myself having just been through a lumbar puncture and MRI with contrast. This showed up multiple foci hyperintensity T2 white matter lesions. I went back to the Neuro after the MRI and before the last l.p and he would not commit to a diagnosis, however, he did virtually talk the whole time about ms so I think that is what I do in fact have. I also have a 12mm lesion in my right frontal cortex. When I read that I nearly passed out. I was more worried about that than anything else, (stroke / bleed) he told me that it had been there a long time and if it was going to do anything it would have already happened!
It appears that if it is ms they like to watch you for some time to see if other symptoms develop etc etc. I am hanging by my toenails waiting for results from the lumbar puncture done around a week ago. I'm in Australia so don't know your situation but the wait and see approach seems the way they like to treat you. I did notice that when my Neuro received the results of my MRI he wasted no time organising a lumbar puncture and his nurse phoned me and arranged it straight away. I know how you feel but hang in there sometimes not hearing from them is a good sign! I worried myself into a miserable state to start with but now that I have found this forum and can put my feelings down in words I feel heaps better. If I have MS then I must adjust my life so as to best manage my condition. There is some great info here with lots of links to other sites and articles on ms.
Best of luck and let us all know how you get on


Regular Member

Date Joined Aug 2006
Total Posts : 28
   Posted 8/29/2006 12:40 PM (GMT -6)   
hi jens,
i'm sorry to put a scare in you.  it wasn't a post of yours that i was referring to.  i post on a few different boards and have seen a "few" posts from young women who have those typical symptoms that bring us to ? is it ms.  and then sometimes i see people pop up and say, hey you know, it could be something else....when i first started having medical issues, my first thought was MS and other things, and i started really freaking, those poor people on the ms boards i posted they must of thought i was nutto with frantic posts, but they were so good and what i learned was.....go to a neurologist, keep a symptom journal, there are several tests to undergo, not just an mri that would leave them to start thinking along the lines of ms. 
so i guess what i'm saying, if you have vision problems, go to an opthamologist and check that out and see what they say and if you have vertigo, balance problems, go to an ent or neuro who will recommend you go to a eng for a horrible test called an although you may be in limbo, take each symptom and be referred to a person who can find out why you have the symptom, if they find no reason, after doing all the testing they should do for a particular disease process, then maybe exploring alternate diagnosis might be helpful but if things start pointing in one direction you'd hate to leave middiagnosis to puruse something else because delyaing treatment for any period of time could make the difference in how your body feels in the future.
good luck jens, i'll be looking for your posts to see how you fare (kind of keeping a low profile
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