MS Hug and other stuff

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Shashi
Regular Member


Date Joined Jul 2006
Total Posts : 156
   Posted 9/4/2006 9:51 PM (GMT -7)   
For the past few days, I've been having really bad muscle spasms and stiffness in my legs and arms and back. I've had these spasms before about a month ago (though not as bad as this time), but my PCP prescribed baclofen which helped a lot. However, evidentially I've gotten use to the dosage or something, because the spasms came back Friday evening and were far were worse than before. (My warning was a "buzzing" sensations in my arms, hands, legs, feet, and face for two days before the spasms started.)

Since Friday night, I've also had a weird sensations around my rib cage, especially on the left side. It feels like someone is pushing on my ribs from the inside and squeezing my rib cage like a boa constrictor from the outside. It doesn't hurt, but it's not really comfortable either. It seems to come and go, though it's there more than it's not. Could this be the MS *hug* that I've heard about?

I've also had the same aggravating feeling of wearing a snug hat or headband that I've had earlier for the past couple of days. Tonight that sensation is spreading down my temples and I'm having numbness in my face and down the back of my head radiating out from those areas.

I was also having trouble walking today - not so much from the muscle spasms, as I have noticed in the past, but my legs felt "disconnected" from me somehow, and the small of my back feels weird.

Am I going to just keep getting worse and worse here. I've been having these latest symptoms since May, and I'm not getting any better. I'll level off for a bit, but then the symptoms come back with a vengence. Dang, I think I'm just falling apart! This is just really getting on my nerves! Could this be a flare? (Couldn't be though. I haven't been diagnosed with MS!)

Should I call my doctor? But I don't even know who to call. My PCP admits that he's perplexed at my symptoms, the first neurologist said I don't have MS and washed his hands of me, and the second neurologist didn't schedule me for a follow up appointment until October. I do have an appointment with an MS specialist, but not until October 12. And I can't even talk to my husband about all this, as he thinks I'm just making everything up for sympathy! AAAARRRRGGGHHHH!!! I HATE Limboland!

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/5/2006 3:29 AM (GMT -7)   

I think you certainly should call your doctor while you are in the midst of what appears to be a flare...of what? Well..if they see you and test you while you're having these problems, perhaps they can get closer to what is wrong.

I know your neuro appointment is October. But there's no reason why you can't call the office, explain the situation, and see if you can be gotten in sooner.  Those appointments are set with this sort of idea: "If nothing much changes, come back and see me in X months.."...but obviously in your situation, stuff IS changing.

Even if the doctor decides to wait until October for the appointment, at least you will have called and gotten the information in to your file.

As for the MS "hug": It is a "banding" sensation. That is, it feels like a squeezing in *entirely around* your torso, or around your head, or around a limb -- its a sensation affecting a muscle group that goes completely around..so not one-sided. The "snug hat" is a good description.

I'm sorry you're having so many as-yet unexplained problems!

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/5/2006 8:29 AM (GMT -7)   
Hey Lisa

Just wanted to step in and say i hope u begin to feel better. I also think u should call u'r doc. It can't hurt and all they can say is they can't see u now...and as uppity said...it'd at least get the symptoms documented for u. That'll be a DOCUMENTED flare or whatever they decide it is. As i've seen, it's important to have that known and documented by u'r doc for the purpose of him/her seeing the path this illness is taking in u'r life and maybe aid in providing a dx down the road. I'll be watching for u'r updates and hoping u do much better.

rhonda
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