wow its good to know i'm not alone, the first time I saw a neurologist she told me there was absolutely nothing wrong with me and she was sure of it, but she'd order an MRI because if not it would keep coming up.........2 days after the MRI she called to say they found something. a chiari which I had surgery for. still I have symptoms and they seem to last longer when they come now. so off I go to a nuerologist, this guy tells me there is absolutely nothing wrong with me neurologically he says i've been having miagraines all these years and should have been on meds years ago............when I asked what the white spots were that showed up on the MRI when they found the chiari he hummed and hawed and said well i'll do another MRI but I know it won't find anything wrong.........I kept thinking famous last words. why don't they take us serious, are they really that into themselves that they believe we would rather be wasting our time with them or going for tests when we could be spending time with our families. I want to be well, I want me back. I can still see my son a few years back when I just wasn't feeling well saying "what's wrong with you, you use to be fun". broke my heart, I haven't been much fun since but not from not wanting to be, its hard when you can't feel your arm or leg or your vision is all screwy, or your balance is so off you stagger when you walk. the eye pain, the numbness and tingling, the trouble talking at times, the poor hand coordination, the fatigue, and weakness.......
and all this is caused from a migraine????
We know our bodies and we know when something is wrong, I don't go to see them to see if something is wrong I know something is wrong, but I want to know what it is. I don't want meds pushed at me to shut me up, I want what ever is wrong fixed so I can get back to living my life
i'm more than an illness its just a small part of who I am but right now its taking over my whole life and I WANT MY LIFE BACK so listen to us darn it we know how we feel and we aren't crazy or whimps or looking for attention.
we want to be well again, or at least know what is wrong so we can do everything humanly possible to fix it or control it cause life is too short to be wasting in dr.'s offices or going for tests.