Another "moment" same as the last one.

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cocoa11
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/18/2006 9:36 PM (GMT -7)   
That nasty pain in my head happened again a couple of days ago along with the same symptoms as before. I will see my GP on the 25th and I must write down what happened so that I REMEMBER to tell her. The weather is warming up here and the heat is making me feel terrible. Again I must remember to tell her. As I am nearly 50, menopause could be the cause of the hot flushes but something tells me that is not the only cause. Now that the Neuro has fobbed me off I will definitely get referred to a vascular specialist. I am worried that perhaps these episodes could be mini strokes (TIA's). I still have numbness in my right leg, foot arm and hand. Only mild but none the less still there.
Does anyone know how often someone who shows lesions on their MRI should have this repeated? I read all the messages here and notice that many have been through several or are waiting to have more.
Thanks Uppity I will ask for a Spinal MRI. I did have one in 2003 but that was for back pain and I was diagnosed with degenerative disc disease only one disc thank goodness, but it does give me a hard time. I think I've told everyone that before. The memory is definitely shot!
Will keep you all posted. Hope everyone is keeping well and coping with their many symptoms.
Don't you just wish that there was a pause button so that you could get some relief just for a while?

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/19/2006 4:28 AM (GMT -7)   
Yes indeed note down when the event happened, and any circumstances around it (were you exerting yourself, exercising, lying or sitting quietly, or whatever). And how long it lasted.

Menopause and hormone fluctuations could indeed be causing some of the symptoms. There are lots of reasons for lesions on an MRI, including migraine, by the way, so that is still a possibility, and migraines can occur during menopause when they might not have happened before. As for "repeat" MRI's...I think until you get some definite diagnosis, the doctor will want to repeat them, to see if anything shows up, like new lesions. And if you go to a different doctor, he's likely to want to have a "fresh" MRI anyway.

But definitely write it down, keep track, and take the record with you to the doctor.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


cocoa11
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/19/2006 10:12 PM (GMT -7)   
Thanks once again for your input. I am actually looking forward to seeing my GP next week so I can get some idea of where I am going with this whatever it is.
I'd like to ask how the sensitivity to heat affects others. I notice with me that it comes on even after the slightest exertion or being out in the sun. I feel as though I am out of breath and feel almost claustrophobic where ever I am. I sometimes even feel nauseated. I am just dreading the Summer. The heat sets off this dreadful itching all over which for me turned into a chronic dermatitis. I know that this is not the normal itching with ms but I was feeling a bit overheated the other day and that sort of all over tingling - itching started up. I had to get out of the room and find a cooler spot. Last time this got hold of me I was 3 weeks in hospital. So, what symptoms do others get when they overheat ? I get this crawling all over prickling then I get really itchy.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/20/2006 3:54 AM (GMT -7)   

I've not experienced the itching that you describe..

Generally if I get overheated -- which can occur on a hot and humid day if I'm out in the heat for more than an hour or so, and more quickly if I exert myself at all --

I first get very lightheaded and dizzy. I find it difficult to breathe. I weaken, then get very red in the face and upper torso (I'm light skinned so this is very noticeable.)  I start to get anxious, then disoriented. I'll develop a fever.

Only getting inside under cool air (or packing my neck and wrists with ice packs to cool down) will relieve this.

I don't perspire -- perspiration is the body's normal way to cool: you sweat, the water comes to the surface of your skin, and the evaporation is what cools you.  The lack of perspiration (which stopped when I developed MS) is the main problem, and of course when the weather is hot and humid the air is already damp, and so any perspiration that does exist doesn't evaporate -- causing my body core temperature to rise (the overheating), and then the symptoms begin.

When you see your doctor be sure to tell him about the problem you have with heat, too, and the rash -- there may be some connection there, and every bit of evidence is crucial to record until you get a diagnosis and know which are really important and which aren't.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


cocoa11
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/20/2006 5:08 PM (GMT -7)   
Thanks Uppity you are wealth of info!
What you have said confirms I am having the same problem, if not exactly the same then very similar. Isn't it terrible. The bright red face is horrible. The only place I seem to sweat is on my forhead. Now that you mention it I don't think I have had an episode of sweating anywhere else for some time. This rash may well be somehow connected to all the other symptoms. Just another question to put to my GP!

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/23/2006 5:43 PM (GMT -7)   
Hey Cocoa11

Just checking on u. How are u doing now? I hope things are better for u.

rhonda

cocoa11
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/28/2006 3:20 AM (GMT -7)   
Hi Rhonda and thanks sooo much for caring.
I am doing ok. Being sent to another Neuro for a second opinion. I have noticed my symptoms are a bit worse than before, especially my spelling ability which has gone out the window! I look at the word and it looks right then when I read it again later I have made a spelling blunder! As I read other messages I see also that others have the same problem, it is so frustrating, I was always so good with my speech spelling and comprehension. The other one is not remembering words when you are talking, that really gets to me! One feels like such a goose. There you are telling someone something and mid way you can't find the word or remember what you were trying to say! Good grief! I have noticed a lot more pins and needles in legs feet arms and hands and occasional numbness. Also a bit of a tremor in right hand when holding a cup or pouring anything with my right hand.
I think my GP is just great and is doing all she can to get me the help that I need. I have been going to her for over 10 years now so she knows me very well. She and I have a really good relationship and we can have a laugh with each other. I am hopeful that I will get some definite diagnosis at the big hospital. I am going first to a Hypertension Outpatient Clinic. As you may know I am in Australia and live outside the capital city where the big hospital is, so it will be a bit of a trek to get there, but hopefully will be worth it. Also referral to the Neurology Dept and I have to pick up my MRI results, lumbar puncture and blood test results from the local hospital.
So how are you going? I hope you are ok. I love this forum, always great to have such support and a listening friend who knows the frustration of ms.

You may or may not know that we lost Steve Irwin the Crocodile Hunter 3 weeks ago, got stung by a Stingray. It has been on our tv every day since it happened. Barbara Walters interviewed his wife. Very sad for her and the kids. It does make you appreciate what you have and cherish the love you receive from family and friends. I will keep you posted

Cocoa

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/28/2006 8:35 AM (GMT -7)   
Hey Cocoa

Yes, i did know about Steve Irwin. We were huge fans and quite honestly were very upset to learn of his death. He seemed like just a good guy and his family seems so sweet. I feel very bad for her and her loss. As she said in her interview with Barbara Walters, "I've lost my prince." How profound. I'm sorry for the loss u'r country has endured...it is quite a loss; to us all.

YES!!!!...YES, YES, YES!!!! I know EXACTLY what u mean about the spelling and speech probs!!! I do exactly the same thing on the spelling and have to go back and fix about every other word. Even words like that one i just typed...W-O-R-D (and the word "typed" too!!) i mess up on and have to backspace and fix! It's not words i don't know or should have to think about...and even if i think about it (knowing i'll prob mess up i take more time now) i STILL mess them up!!! My speech probs are a little different. I can usually think of the right word, but at times that's an issue. More for me is the pronunciation of the word. I have NO IDEA what is gonna come out of my mouth at times. It'll resemble what i was about to say, but have a weird beginning or ending or just flat out be said stupidly! My kids LOVE that and sieze every oppertunity to correct me. I think it's payback for all the language correction they receive from me! haha Even my husband is getting on the bandwagon now....and makes a joke of it all. I guess it's ok; i'd rather that than it be an off limits thing.

Yes, i know the pins and needles u'r speaking of as well. Fortunately for me, they come and go. How about with u?? Do u get any reprieve? My biggest prob is my legs. They hurt bad and they are weak. Do u have any pain in u'r legs? I don't see too many on here who do and i wonder if that's something really more unrelated to ms. I haven't had any tremor that i can say is definitley that. I sometimes notice my shoulders (i guess that's where it's at...seems like it is) will shake or tremor or something when i move my arms a certain way. It's only after exertion tho, so not an issue. This morn i'm feeling a vibration in the bottom of my LEFT foot. That's very odd for me since my symptoms are mostly right sided. Do u'rs reside more on one side or the other?

I truely hope and pray u'll find some answers at the hospital. Sounds like u have a great doc and i'm so glad u do. I've seen that's priceless when going thru something like this. Please let us know how u are and how u'r appts go. I'm very hopeful u'll get some much needed relief. This IS a great forum and was a life saver to me when i found it. Since finding it i've learned so much. It's hard to explain u'r own symptoms at times and seeing them put into writing so u understand...not all clinical...is sooo valuable. It gives u the words u need to then go back and explain to the doc's so they see how u'r feeling. The people here are wonderful and priceless. If not for them i'd have lost hope by now. Take good care Cocoa and please update on how u are.

rhonda

TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/28/2006 11:11 AM (GMT -7)   
I get alot of pain in my legs too. I feel pins and needles (it's subsididing some with the cooler weather) sometimes it feels like a big band is tightning around them,and they hurt soo bad expecially when they are tired. alot of times my joints ache almost like I have arthritis .I get these symptoms in other parts of my body too but its more bothersome in my legs. Does anyone know if support hose helps? I can also relate to the typing, speech and trying to come up with words. It took along time to type this, and I changed alot of words because i can't figure out how to spell them.
I wish all of you many GOOD days, and the comfort knowing that you are not alone.

cocoa11
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/29/2006 3:21 AM (GMT -7)   
When I try to get up out of bed in the am I try to stand up and my legs won't straighten and they hurt like anything. I almost stumble my way to the bathroom and it really hurts my feet. Sometimes I think that I may topple over as I just can't straighten up and walk. When I stand up sometimes it feels that I am standing on a ball under the arch in my foot....it feels terrible, swollen and painful. This comes and goes in both feet.

I have a corner cupboard in my kitchen that I hate. For me to get anything out of it I have to kneel down to access it then I have such trouble standing back up my knees are so painful. I haven't tried any type of remedy for it so I'm not sure that support hose would help. Might be worth a try! We all seem to have similar symptoms so it is great that others KNOW how horrible it is!!

Got to get to bed, am late with my medication and the pain is kicking in. 08:19pm here, way past my bedtime!


Cocoa
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