This is my first post to this site and I am hoping to get some feedback from others who have taking the rocky road of finding out if they have MS. I am sorry for the length of my posting however I am at my wits end.
This all started back in March 2000 after having injured my Left rotator cuff at work. Shortly after this time frame I started to experience a lot of issue with chronic dizziness, nauseous and difficultly walking. When I would sit my legs would begin to jerk involuntary. I would also have issue with my knee buckling when walking. I lost about 8-10 lbs due to being nauseous. I made a trip to my family doctor who referred me to a neurologist. I should also note that for as long as I can remember I have had a lot of pain through out my arms and leg and issues with headaches and fatigue regardless of how much sleep I get. I also had to leave work for a period of 3 months due to my issues.
By the time I got in to see the neurologist most of my symptoms were gone. During the neurologist visit I was told I possibly had MS and was sent for an MRI (brain only) and a ton of blood test. The MRI came back negative and blood work was fine. When I went for the follow up visit the neurologist basically told me that my symptoms were all in my head, that I was young and to get on with life. I was 24 at the time. I was told that I have an anxiety disorder and was given Paxil to take. That was short lived due to side effects.
I returned to my family doctor at which time he stated I had fibroymaliga and put my on 100mg of amitriptyline (elival) for the pain and issues with sleep and fatigue. I did not find any improvement. I remained on this for about 3 years. Over the years it was determined I have IBS, restless leg symptom as well. During that time my symptoms would come and go, many trips to the doctor were frequent and he would just want to increase my elival.
Over the last 3 years I have had many issues with the chronic dizziness, ringing in my ears and have been given serc on several occasions. My family doctor said it was Meniere’s Disease. I was giving 2 hearing tests a few years apart all was find, no hearing lost and was referred to ears, nose and throat specialist who told me that I did not have Meniere’s due to no hearing lost and was giving a prescription for what he said was silent migraines. This medication gave me migraines.
I also had issue 1 ½ years ago with a lot of pain in my Left arm. Any time I would attempt to pick anything up pain would shoot up my arm. I went for testing to check the nerves all was fine.
I had accepted the fact that I had medical issues and nobody would give me a straight answer. This brings me to the present time. The last 3 weeks have been really bad.
I went last week to my doctor who sat down and I thought he was taking me serious finally. He sent me for CAT scan and blood work. All which came back fine, that was going to be the end of it……I advised him that something more has to be done this is effecting my work and my personal life and I need to know what is wrong, not another brush off. He said it was anxiety that was causing all my numbness on my left side. I again brought up about it possibly being MS. He stated that in the last 25 years all his patients who have MS are only effected from the waist down and because I do no have muscle weakness I do not have MS. He said if I really feel it to be necessary he would refer me to a neurologist. So now I am waiting for my appointment to have this looked into further.
List of symptoms:
NEW - Sentences not making sense, not being able to get words out or using wrong words
NEW - Muscles cramps in my legs/Charlie horses
NEW - Tripping over (L) foot
NEW - Left leg, arm and Left side of face going numb, difficulty picking up small items or tie shoes with Left hand, not able to determine amount of pressure applied to items
NEW- Hazy vision in Left I, went to eye doctor and he could not see any issue, was having hazy vision at the time of exam.
NEW - Issue with swallowing, certain food are getting stuck in my throat when I attempt to swallow. I have to concentrate and breath slowly to get my food down.
NEW - Felt like somebody was sitting on my chest, could not breath
Pain in my arms, legs, neck, headaches
Pins-and-needles if sitting or standing for a long time
Was incontinent several times in one day
Difficulty in night driving, sensitivity to bright lights
Up during the night 3-5 times to urinate
Knee buckle when walking
Mild to sever vertigo/nausea/Increase in motion sickness, very clumbsee walk into things
Memory Issues (only minor, did I turn to burner off before leaving for work, did I lock the door, turn off car lights….)
Sentences not making sense, not being able to get words out or using wrong words
Electricity running down my Left arm into index finger and thumb
From the reading I have done, I understand that an MRI may not show lesions in the early stages of MS. And they recommend a follow up MRI in 6 months to a year if you continue to have symptoms or develop new symptoms. Which I have so why is my doctor not willing to invest age this further. Also what my doctor stated about not having muscle weakness therefore I do not have MS, is there truth to that.
A year back when I was going through a flare I again brought up the fact of it possible being MS and he looked at me and stated so what if it is MS, then what…..
I am just sick and tired of being sick and tired. I want an answer, nobody understands my family are tired of hearing me go on and on about this and that they tell me to learn to live with it and I am getting older and these things come with age. I am only 31; I should not have to live like this. I look at my husband and friends who are bowling 2 times a week play softball every week in the summer and I sit on the side lines because my body will not allow me to take part. I am willing to live the rest of my life sitting on the side line watching time pass me bye, I want and need an answer my life has more to offer, Does it not?
I thank you for your time and hope to hear from you in regards to your thoughts and feedback as to what I should do next.