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harvest
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/13/2006 1:19 AM (GMT -7)   
I started out by twitch on lip and it spread to every part of my body.  Had MRI done over a year ago, clean.  A c and t spine MRI 8 months ago, clean.  Also two emg's about a year ago, clean.  Point is, the symptoms then seem nothing compared to what I have now.  My body goes numb, sometimes right side then switches to left side.  My arms feel so heavy and numb, and pain..oooh the pain in my shoulders is horrible.  I am still twitching, but it scares me now when that stops because that is usually when the tingling, numbness starts.  My right eye has been twitching on it's own for a week now and feels like it is not attached to the other one like they are going in two different directions which they are not at least not noticibly.  When  I have tingling/numbness I am also weak in that area.  I am an anxious person, thanks to this, but getting tired of everything getting chalked up to this.  "This" is creating the anxiety.  I can't sleep lately because of the numbness gets worse when I lay down. I also get dizzy a lot.  Please help.  My boss went blind in one eye, nothing on MRI's, a year or so later she went to new neuro because of pain in neck and low behold lesions and quickly diagnosed with MS.  Could all of my Mri's have been clean a year ago and too early to tell?  I wasn't having any numbness then, just muscle twitching.  Any help would be appreciated, my quality of life is suffering and I just want to play with my kids and have my free spirit attitude back..Thank you so much..

Lorgirl
Regular Member


Date Joined May 2006
Total Posts : 58
   Posted 10/13/2006 5:55 AM (GMT -7)   
There is something called Benign fasciculation syndrome.  It is when you have muscle twitches for no apparent reason.  There is a really good website out there about that with a lot of info and support from others with it.  I don't think I can mention the name on here, but if you look on the internet, I bet you will find it.  I'm no expert on MS, but it doesn't sound like MS to me.
 
Many times the more anxious we get about things, the more symptoms that tend to show up.  Plus, you become more aware of these things happening where if you weren't anxious about it, you may just ignore them.
 
Good luck.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/13/2006 9:34 AM (GMT -7)   
Hey Harvest

Welcome to the board! I guess the easiest thing for me to say to u is to try to calm down. It seems that u've been dealing with this for at least a year and being anxious as u say u are can make u sick all by itself. I know it's very difficult to see this stuff happening and not worry. I have some of the same things...off and on...and i worry. As Lorgirl said tho, the more u atune u'rself to the situation the more u notice and the more worried and anxious u are. Vicious cycle. That said, i understand u'r worry and how scared u must be. Things can happen with the nervous system that are so off the wall and it can take a long time to pin it down and know what it is.

U say u've had a clean MRI and two EMG's that were clean a year ago. Is u'r doc following u? Is he/she having u come back for follow up visits or were u told to report any new symptoms/findings? A year is a long time and u may need to have them repeated. Also, there are blood tests that should've been performed to eliminate/dx other possibilities. Was there any blood work done? There are a multitude of tests that should be run and u'r neuro will usually perform these in an attempt to find the cause of u'r symptoms. If nothing else has been done, it'd prob be a great idea to persue that. I'd suggest getting in touch with u'r neuro (did a neuro order the MRI's and EMG's?) and scheduling an office visit. Write down all the symptoms that u've had from beginning this up to the day of u'r appt and take them with u for the doc to see. As another member here has suggested many times, make them short and sweet. Don't over explain. I guess put it in a format that would be easy to read and get thru in the least amt of time...as u know they don't typically spend too much time in the exam room with u. Keep that info. Add to it as u experience new/recurring symptoms. Describe for u'rself how they feel and how long they last each time. Most here keep such a journal of things and it's a great idea. I hope u can see a doc soon and get to the bottom of this. Please come here and ask as many questions as u want or need to and let us know how u'r doing. Eveyone here is great and more than willing to help in any way they can. Again, Welcome!

Penny0932
New Member


Date Joined Jun 2006
Total Posts : 12
   Posted 10/14/2006 6:28 PM (GMT -7)   
Hi,
 
I don't know much about your situation except for your symptoms. Are you getting a decent amount of sleep every night? Are you under any stress? Do you have to resort to caffeine to keep going most of the time? If you answered yes to any or all of these questions you may simply need to find a way to get more adequate rest & limit stress. Lack of sleep, stress, and as a result fatigue can rob your body of energy that you need to function normally.
 
If you can resolve those issues, it may take a little while for you to see results but it should help and as time passes reduce if not eliminate your symptoms. If you're having trouble sleeping a good thing to try is over the counter melatonin. Your body usually makes melatonin but if your stressed or just overly tired, your body may not be making enough for you to get a full nights sleep.
 
Good Luck and I hope this helps.
 
Penny

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 10/14/2006 10:49 PM (GMT -7)   
Hi Harvest,
 
Rhonda gave you some great advice.  It does sound like you need to pursue this further to me.  The symptoms you describe could be MS, or many other things too. 
 
I also have anxiety and can totally sympathize with you.  It is so frustrating when symptoms are dismissed because you have anxiety.  I'm almost at the point where I don't tell people now because some of them assume everything is in your head.  I am living proof that you can have severe anxiety and also a medical condition as I was diagnosed with MS in April.
 
Who wouldn't be anxious with all of this stuff going on and having no answers....
 
I wish you the best,
 
Shar
If it's meant to be, it will happen

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