Yesterday was my long-awaited (three months) appointment with the MS specialist (who, by the way, is the third neurologist I've seen since June.)
The appointment almost didn't happen. I was having lunch and got two message on my cell phone. The first told me that the doctor had had an emergency and they needed to reschedule my appointment. I almost panicked when I got that call, since it took me so long to finally get to see her, and I wasn't about
to reschedule after all this time. The second message told me to disregard the first message, that I still needed to come in, and that I needed to be there early to fill out paperwork. Whew, that was a relief!
When I got there, I met the office staff who were wonderful, very happy and friendly. It seems they got me mixed up though with another Lisa who had an appointment right after mine and who they needed to reschedule, hence the two messages.
Anyway, I really liked the neurologist. She was very friendly and had a good sense of humor. She did a very thorough exam, took a look at my MRIs, and asked me lots of questions.
She had me remember three words, which I was able to tell her later, but it took me a minute to remember them. Then she asked me to spell "spring" and then spell it backwards, but I left out the "r".
On the exams, it looked like I had hyperactive reflexes in my left knee, as I kicked her good when she tapped on that kneecap. It also looked like I had no reflexes in my ankles at all. As for the Babinski, it was still present in my left foot, and looked like it was starting in my right foot as well. I also had marked weakness in my left leg.
When she was examining my eyes, she turned out the lights and I had a bright flash, like a flashbulb in my right eye. That was kind of weird!
Regarding the MRIs, she said she had never seen a brain as perfect as mine. She said that even people that didn't have anything wrong with them usually had something abnormal on their brain MRIs, but not mine. She said it was so normal it was almost abnormal. (She must not have noticed the empty sella syndrome that's been diagnosed on the last two brain MRIs I've had.)
Anyway, she said there is definitely something neurological going on and my symptoms do sound like MS, but that since my MRIs are so normal, it may be something else. She said there was only one test left that was needed to rule out MS, and that is the LP, so we're going to go ahead and do that. They're going to call me today and tell me when that's scheduled.
I'm also having an EMG done next Tuesday. And she suggested a sleep study to see if I have sleep apnea, which could account for the constant fatigue and cognitive problems.
She's giving me Topamax for the occipital neuralgia headaches that I get, and then another medication (I can't remember the name of it right now) which can help control the tremors that I have, which she noticed during the exam.
She also recommended having my PCP refer me to a rheumatologist to see if something else might be going on in my joints.
Anyway, that's the gist of my appointment. I still have no answers, but maybe one of these tests will show something that can explain my symptoms.
Living in Limboland!