As many of you know, I haven't been diagnosed with MS. Since my MRIs, LP, and all but one of my EVPs came back normal, I may never be diagnosed with MS, though from my symptoms, I'm almost positive this is what I have.
I'm currently taking nortriptyline for nerve pain and numbness, baclofen for muscle spasms and stiffness, and Zantac for gastric reflux. I've been on all three for about two to three months now, and they have worked pretty well, though there have been times when I've had flares and nothing worked.
I've actually been feeling a lot better recently. I still have the internal vibrations with occassional buzzing (especially in my hands), and my legs get a bit stiff, sore, and weak if I walk too long, but most of my other symptoms, other than the odd shooting nerve pain, seem to be decreasing.
I would like to eventually stop taking some of these medications I'm on. (I've also taken Toprol XL and a diuretic for high blood pressure for the past four years.) I hate taking medications if I can do without them at all. I'm just wondering though if I can stop these three without risking a reoccurrance of these symptoms. I mean, am I supposed to take them forever? What if the symptoms are gone and I don't know it and just keep taking them?
Has anyone else ever been able to stop the medications for your symptoms without having problems?
Living in Limboland!