yep your right, it is scarey, and yes some cases are very severe, but the sooner meds are started the better, thats what i think and most of us here think that too.
I am aware of the fact that, eventually i could end up in a wheel chair or much worse, but on the other hand, might not have a permanent disability. even though ms is a permanent disability. everyone is different and the effects on each person with ms is different. sometimes i have to use my cane and others like i dont have ms at all.
my dr believes that ive had it for over 3 yrs when i first starting falling down, but i blew it off as being clumsy. and back then, my lesions might have not been large enough to detect on the mri.
yes we have ms, and correct its not the end of the world, its what we do with the rest of our lives that count. since my diagnosis, i have come to realize that life is a blessing, ms is a blessing for me. I appreciate everyday much more, have a new appreciation for my husband and family that care about
me. kinda sad, that it took ms for me to "wake up" but im glad it did. i think now, i can live and love more fully. make "today" the best day because with or without ms, you never know what tomorrow is going to bring.
my son is in a boys n girls home, he is going some emotioal issues and my husband and i just couldnt get him the help he needs. before the dx, he was very stressed, thinking mom had a brain tumor and was going to die. now he knows what has been making me sick and he is doing much better, just knowing that its not a tumor. yes i tell him we all die some day, but that is life regardless of what we have or dont have. yes we get anry or feel sad, but its what we learn from it and how we use that knowledge in the future is what counts.
see if your town has a ms support group, some are listed on the national ms society web site, i think its under local chapter. my "local" chapter is 3 hrs away. but there is one here in my town not "sponsored" by the ms society. i havent been able to go yet, the meet once a month, and i have been in classes, but i will be going next week to my first one.
i believe that getting a network of people that understand what you are going through is sooooo important. even if its just that knowing you are not alone in this.
when we move in 1 1/2 yrs, (hubby is a marine corps recruiter) our duty here will be over, if that town doesnt have a ms support group, im going to take the bull by the horns and search and find and start one.
which is kinda ironic that i ended up with ms. when i was 13, i did the ms read athon, and was 2nd in the state of AZ for the most books read and money earned. think it was my destiny.
you have a great weekend and hope to talk to you soon.
Mother has MS, diagnosed 10 yrs ago.
Diagnosed with spastic colon in 2000.
Diagnosed with RRMS Sept 06
Provigil 100mg, Copaxone
Posted 11/3/2006 6:32 PM (GMT -7)
Thanks for that encouragment whitedragon78. I will try to find a support group here. It may be that I can't reach it, but if I can't just being able to share and talk to other people that understand what is happening to me even when i don't on this board makes me feel a little better.