Questions about husband - not diagnosed

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Lorgirl
Regular Member


Date Joined May 2006
Total Posts : 58
   Posted 11/6/2006 9:24 AM (GMT -7)   
Hi everyone.
 
I had written on this site awhile back about my husband.  I'll give a quick summary.  He started having dizziness in 2003.  He was training for a triathalon and would get dizzy when exercising.  He was tested for everything including his ears, heart, etc.  The ear test did show a small problem but the doctor didn't think it would cause the problems he was having.  He had an MRI and MRA and EEG in 2004.  The MRI said he had several small scattered t2 hyperintensities, but said it was non-specific.  He continued having dizziness especially when he got his heart rate elevated (when exercising) and went to a neuro in town here in August.  He also had an episode where his hands went kind of weak and he had trouble holding a pen, but it was brief and went away.  The MRI results of that one said he had several small non-specific white matter lesions.  In the doctor's report, he mentioned two spots that "lit up" on the MRI, but that he didn't think were conducive of MS.  He thinks my husband may be having mini strokes, due to his symptoms.  He isn't ruling out MS, but doesn't think the lesions indicate that or his symptoms.  WE are still concerned about it.  Anyway, last week my husband had a big "episode" where he suddenly got very hot and dizzy and his arms/hands were weak.  It only lasted about an hour and he was fine.  He didn't go to the doctor immediately which he should have.  HE currently is relocated in a different state for his job and I will be moving there in January.  THe doctor he has been seeing is located here where I live.  I called and talked to the nurse on Friday and she said that the doctor wants him to establish with a neuro in the state he is living and get an MRI done immediately.  He thinks he had a TIA (mini stroke).  We called the doc down there and he can't get in until he gets a referral and then they said he can't get in until January.  I am going to get a hold of the doc here and see if he could at least do another MRI over Thanksgiving.
 
My question for you is do you think the episode he had last week sounds at all like something that would happen in MS?  His recover was so quick.  It's not like it lasted 24 hours or longer.  Also, if it does sound like a stroke, how can they make him wait until January.  Any ideas on how we can get the ball rolling faster?
 
This is very concerning to me.
 
Thanks

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/6/2006 9:31 AM (GMT -7)   
I'd be real concerned too! I think especially after having a doctor suggest mini-strokes, it's really important that he be checked. And as you noted, he should have gone to a doctor immediately.

If it were my husband, I'd be back in touch with the local doctor, give him the name of the doctor you talked to, and ask the local doctor to call the new doctor. Sometimes doctor - to-doctor calls will get you in much more quickly. And if that didn't work, I'd be shopping for a different doctor. At the very least, I'd ask to be put on the "cancellation" list -- if a patient cancels, schedule me to come in right away.

It has to be so challenging to have him far away, with all this happening! Good luck to you both.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 11/6/2006 4:09 PM (GMT -7)   
Hi Lorgirl,
 
    Some good advice here by both ladies on how to get the ball rolling.  I do agree that he needs to be seen asap and waiting until January is not acceptable.  Hopefully, the old doctor to new doctor call will do the trick, knowing his previous history from a doctor might speed things up and get him in sooner.  The first care facility also a great suggestion if you have to go that route.   I'm sorry you have to worry from a distance, that must be very hard for both of you.  Please let us know how things progress, and know that both of you are in my thoughts. 
 
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pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 11/6/2006 4:15 PM (GMT -7)   
Lorgirl: My husband suffers from TIAs and sounds a lot like the symptoms your husband has suffered. Controlling cholesterol and BP is one of the main tx plans for this occurence. This is something you can do while waiting for MD visit. Has your husband had a cholesterol ck and does he regularly ck his BP? There are several BP monitoring devices on the market now at a very reasonable price. We slacked off on close monitoring of his TIAs since my disease diagnosis, but we started again today on working on a healthy choice diet w/exercise. My husband was told that if we didn't control his cholesterol (on med, but is inherited from mother), it could lead to major stroke. If he has an occurence, please tell him to go to the closest ER. While working in the hospital, I saw pts who reported immediately and those who waited. I don't have to tell you that the pts who reported immediately had a much better prognosis. Since you are living in seperate areas until your relocation, is he visiting the fast food places a lot? I know my hubby did while I was recuperating from back surgery and his cholesterol and weight increased and caused problems. Back on the rt track now and planning to stay on it! Good luck. Husbands are hard to get to a doctor!

Lorgirl
Regular Member


Date Joined May 2006
Total Posts : 58
   Posted 11/6/2006 7:45 PM (GMT -7)   
Thanks for all your replies. I talked to the nurse here and she was going to call the doctor's office down in Indiana to see if she could expedite things. She also said he could have the MRi here on Thanksgiving break if he can't get one there any sooner than that.

My husband ticks me off because he didn't go to the hospital right after it happened. I guess he is so sick of trying to find an answer to all his different symptoms that he is afraid to get another "we have no idea what is going on" type of answer.

He has gained weight in the past year because whenever he exercises he gets dizzy. He used to be a triathalete and exercise daily until the dizziness started. WE first thought it was due to something with his heart because it happens whenever his heart rate gets elevated. It occurs even before he gets heated up also.

It is frustrating to deal with this long distance because my husband is not as vigilant about it as I would be.

I'll let you know what happens.

Thanks.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/6/2006 8:03 PM (GMT -7)   
Lorgirl

Just wanted to stick my head in here and tell u i'm following things with u and hoping and praying for the best possible outcome with all this. Know we're here for u for all we can do. Please keep us informed on how u'r husband AND U are doing.

rhonda

Patryce
New Member


Date Joined Oct 2006
Total Posts : 1
   Posted 11/6/2006 11:33 PM (GMT -7)   
Lorgirl, be sure your husband sees a doctor who specializes in MS. Call your local MS Society for some recommendations or a local medical school. This diagnosis can linger if you can't find the right doctor. I hope all goes well. Whatever you both do, don't panic. There are many medical options that can help your husband if in fact the diagnosis is MS.

I've been dealing with MS for 20+ years and continue to keep up with what is going on in clinical trials and new research. Be optimistic.

Patryce

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/7/2006 2:04 PM (GMT -7)   
Patryce said...
Lorgirl, be sure your husband sees a doctor who specializes in MS. Call your local MS Society for some recommendations or a local medical school. This diagnosis can linger if you can't find the right doctor. I hope all goes well. Whatever you both do, don't panic. There are many medical options that can help your husband if in fact the diagnosis is MS.

I've been dealing with MS for 20+ years and continue to keep up with what is going on in clinical trials and new research. Be optimistic.

Patryce
good advice...'cept in the first post the descriptions she offered make it sound much more likely that her husband is dealing with some vascular issues (mini-strokes), and not MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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