I voted yes. Here are some random thoughts I hope you consider:
1) You're a NURSE. Would you advise your patients to not tell your doctor everything that is going on with them? How can the doctor begin to help you learn to deal with your disease if you don't tell her what is happening? Just as you do with your patients, you need to develop a list of most troublesome symptoms and if you're afraid to voice those to your doctor, then hand her the list.
2) You're a nurse. You probably have access to many more medical journals than I will ever encounter. If you do a bit of reading in some of those, you'll learn that "remission", when it comes to MS, does not always mean a complete absence of symptoms as it might with some other diseases that also "go into remission". "Remission" in MS very often means a lessening of symptoms, a reduction in intensity of symptoms. Once the damage is done to the central nervous system, once the myelin is destroyed, the disability...the symptoms...remain. They may lessen in intensity over time, and then intensify other times -- particularly when you spend all day on your feet, "grocery shopping and cleaning, and having a BBQ". You noted that you sit a lot at work -- so don't notice or pay attention to the fact that your legs are weaker...but it becomes obvious when you're on your feet all day, at home.
3) People can be diagnosed with secondary-progressive MS at the start. Sometimes it means that indeed you've had MS for some period of time before you sought medical help (and a diagnosis). Sometimes it just is that your particular "case" is that you have spms. But it sounds to me like you probably do have relapsing-remitting MS, but are just hoping that "remitting" means an absence of symptoms...and while some folks do talk about that, all the folks that I've known who have MS will report that they've never had a complete absense of symptoms,
but have always experienced some symptoms. Fatigue is common -- you may have to consider working fewer hours. And while you're seeming to cope now with keeping track of all you need to, to serve your patients, that might become a problem in the future, so you might want to think about how to deal with that. It's easier to think about work accommodations now, before it's a crisis, than later, should you have a major exacerbation and be unable to work.
4) Denial is a wonderful thing. It can protect us for a long time, from a lot of hurt and anxiety. But eventually there has to be a time when denial continues down the river and reality sets in. You've got a chronic disease...and while 25 is certainly a very young age to have to deal with that, you have to deal with that. MS does suck. Big time. But there isn't much you can do about it.
5) which brings up: Guilt. You have nothing to feel guilty about. You didn't bring on the MS, you didn't do anything to get MS, the fact is, you have MS, and you'll have to help those around you learn what that might mean: you can't shop all day, clean house, host a BBQ, and lean up afterwards, without paying the price, big time, the next day (or several days). That MS-fatigue is unlike any fatigue they might experience -- your body is telling you it's doing the best it can to cope with a terrible set of signals coming from your brain, muscles that aren't used to doing certain tasks being put into play to do them, exhausting you -- and they're going to have to deal with pitching in and helping, sometimes without asking, sometimes overriding your insistence that "..I can DO this!" when they see that you really can't. And so on.
Tough to do at 25. Truth is, tough to do at any age. I fought it long and hard when I was first being diagnosed at 33. But there it is.
Ramblings of an old lady.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....