OK, so saw the MS specialist today. Says that she is "leaning towards the MS diagnosis" but wont tell me for sure!!! Says she wants to do another scan in 6 MONTHS!!!! So that means I wait for 6 more months??? I have lesions and I have numbness and positive LP! Says its "most probably MS." Wants to do an MRI of my thoracic spine which hasnt been done yet.
I said "ok fine, but what about my hand which is getting no better at all?" And she says "I really dont know how to treat that. I could give you an ivy of steroids but I dont think it would help now. It might be permanent damage..." WHAT THE HELL! So I said "Ok, so what would put you over the line regarding the diagnosis?" She said "A change in lesions or another major symptom..." So I was like "So I have to wait for my leg to go before I know anything for sure?" ARGHHHHHH! She wont give me teh medication because she said it wont make a difference between now and the next scan anyways, and wont relieve my symptoms so no point.
She also did another neurological exam and said I have right sided weakness generally in both my hand and my arm. I KNOW THAT!!! My feet hurt! My leg pains and numbs up! HOW CAN I NOT HAVE A DFEINITE DIAGNOSIS?? THERE IS SOMETHING MAJOR GOING ON IN MY BODY! My hand is already GONE. I dont want anything else going! I am right handed!!!!! And my hand doesnt work right!!!
And she tells me "Well, your symptoms arent evident to anyone else by looking at you." I said "Yes, they are not, but they are TO ME. I cant WRITE or TYPE properly! I had to get new software at work cause it hurts me to type! I have to take breaks when I wash my hair! I cant bend my hand! That is significant TO ME." ARGHHHH!
Am REALLY aggravated... Oh well, I guess i just wait and hope another body part doesnt numb up and stay that way! MEanwhile at least I have europe to look forward to...