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jcnet
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 11/25/2006 5:23 PM (GMT -7)   

Hi, my name is Juan Carlos Gonzalez. I live in the USA, I’m a permanent resident. I’m from Ecuador, South America and my family live there. 

My youngest brother is 34 years old, He's in Ecuador and he was diagnosed with Multiple Sclerosis Aggressive and Uncommon.   His medical history:  about one year ago he was paralyzed from his waist down. The doctors in Ecuador treated this condition as a viral infection to his spine. He was at the hospital for one month and after a lot of antibiotics and a lot of rehabilitation he was walking again and apparently everything was OK. Sometimes he had to walk using a cane.   Two weeks ago, on Sunday  11-05-06, he woke up and he was feeling his left side numb and he couldn’t walk. My family took him to the Hospital and by Wednesday  11-08-06 he was unconscious in Intensive Care. 

The doctors have done a lot of blood tests, MRIs, cephalorachidian fluid tests and finally on Thursday 11-23-06 he was diagnosed with MS Uncommon and aggressive, but the doctors say there’s something else more, like a bacteria, or a fungus or something, they’re not sure yet .  They’ll be doing a biopsy of my brother’s brain some time next week and after that, doctors will know what’s going on with him. My brother has been unconscious ever since that Wednesday 11-08-06. He has been given corticoids and medicine since 11-08-06.

 

If anybody knows about any institute or any foundation that treat cases of MS could you please let me know if they could help me or how to get in touch with them? I need help to bring him here to the States and help to get medical treatment

 

Thank you very much for your help


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 11/25/2006 6:31 PM (GMT -7)   
i don't have any info for u but will keep ur family in my prayers.

Sheila

Sandy C.
Regular Member


Date Joined Feb 2006
Total Posts : 129
   Posted 11/25/2006 9:20 PM (GMT -7)   
The Mayo clinic I hear is good for people with MS. Univerisity of California, San Fransisco is where I go and they do a lot of research out of their MS clinic. University of California, Los Angeles has very good adult neuro facilities as well. As far as a transfer to the states for treatment, that may be much harder. Just to transfer a patient between hospitals locally the patient needs to be stable to do so.

I am sorry to hear about your brother. You and your family will be in my prayers.
Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Rebif, Cymbalta 60mg PO QD, and Provigil 200mg PO BID.


jcnet
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 11/26/2006 1:14 PM (GMT -7)   
Thank you for your reply, and thaks for your prayers, I will keep in touch, thanks again!!

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/27/2006 3:15 PM (GMT -7)   
Hey Juan

I'm sorry, i don' have any info to help u with this, but wanted to let u know i'm following u'r thread and praying for u'r brother and u'r family. Please keep us posted.

rhonda
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