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Regular Member

Date Joined Jul 2006
Total Posts : 156
   Posted 12/1/2006 11:49 AM (GMT -6)   
I had an appointment with my PCP this afternoon for a check up on treatment for my chronic cough and IBS. While I was there, I told him that I'm still having the same problems that I had during the summer that he referred me to the neurologist for and that the symptoms will ease up for a period of time, then reoccur and become even worse. I also told him that in between, I'm being left with residual problems.

He said he's still clueless as to what is going on. He did say that he has another patient who has symptoms identical to mine. She's been to two neurologists and a rheumatologist. The rheumy told her that he wasn't sure what was going on either, but it was definitely something systemic. He said if they couldn't figure it out, they would send her to Mayo Clinic.

My doctor then told me that if we can't figure out what is going on with me, Mayo Clinic might be the next step for me as well.

Tell you what, I'm ready to go if they can just figure out what is wrong and help me feel better!

Have any of you ever been to Mayo. How difficult is it to get an appointment with them, and were you able to get the answers you needed?

Lisa ~
Living in Limboland!
Negative MRIs + Negative LP + Positive symptoms = A lot of confusion + A ton of frustration!

Regular Member

Date Joined Jun 2006
Total Posts : 74
   Posted 12/1/2006 7:27 PM (GMT -6)   
I went to the AZ Mayo Clinic the last week of Sept.  After, seeing 5 local neuros. well mostly local, in the state anyhow.  And after shrugged shoulders and them guessing, and in and out of the er and reg dr for this and that.  WE (hubby, pcp and me) decided that we needed the Mayo.
Just warning you ahead of time, ck your insurance to make sure they cover it, and if you need to do a referral or get prior approval you can.
We chose the Mayo because they not only have great neuros, but also treat other ailments/diseases.  So we were confident that if they said no on MS or any other neurological issue they would go to floor or this specialist.  That they would at least be able to narrow what might be wrong and point us in the right direction. 
It very well might take several months to even get the appt at the neuro dept of the Mayo.  We put in the request in June and my appt was in sept. 
Also, i did learn from the Mayo, that once they get your records from your dr. that a "team" of neuros looks over it and they decide from there if they Mayo clinic can help you.  If they dont feel that the can be of help, they wont set an appt.  If they feel that you have had every test possible done to rule in/out things they wont set an appt.  That in itself was a relief to me.  We are still fighting with the ins to cover everything.
Depending on how far you live from the clinic also is a factor.  I live in Nebraska, and went the one in Scottsdale AZ.  I was there a week,  they do try to get everything they think needs tested for done quickly.  I had appts all that week except on tuesday.
Hope this helps you in your decision and finding out an answer.
Mother has MS, diagnosed 10 yrs ago.
Diagnosed with spastic colon in 2000.
Diagnosed with RRMS Sept 06
Provigil 100mg, Copaxone

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