Undiagnosed-buzzing sensations everywhere-Why?

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Jenny R.
Regular Member

Date Joined Sep 2006
Total Posts : 162
   Posted 12/1/2006 3:17 PM (GMT -6)   
I am not diagnosed with MS, although everything that I read points to this, but my brain and c-spine is normal, after 6 years of suffering from these strange sensations.  These are everyday, they lasts only seconds, then return, sometimes hours later, sometimes seconds, it all depends.  I have been getting these buzzing sensations today, in my legs, and through my stomach area, I sometimes get these also on my scalp and face, arms,and back.  Is this what you call Lhermittes sign?  I don't have to bend my neck for it to happen though.  I read on another website that this is a different form of lhermittes, is that true?  I don't know what to do, they drive me crazy, if its not the cold water sensations, then its the twitches, and now buzzing, whats up with this?  Does anyone know where I would have to have a lesion at for me to have these sensations "everywhere"?  I am truly a basketcase, can't stop worrying, thanks so much!!!

Regular Member

Date Joined Jul 2006
Total Posts : 156
   Posted 12/1/2006 3:28 PM (GMT -6)   
I'm not diagnosed either, but have been having buzzing sensations for months now. Mine usually are a warning of a new flare coming on, though sometimes I get an isolated buzz in a foot or finger for no apparent reason.

I don't know if they're Lhermittes or not though, because mine can go on for hours and sometimes days, no matter what position my head and neck are in.

I'm not sure why they occur. They're just weird though. I told my PCP yesterday that my husband keeps telling me this is all in my head, but that some of these symptoms, like the Buzz, are so far-fetched that my limited imagination could not have possibly dreamed them up.
Good luck to you.  I hope you get some answers to your health problems soon.  I know how aggravating it can be to know something is seriously wrong, but all the tests show normal.

Lisa ~
Living in Limboland!
Negative MRIs + Negative LP + Positive symptoms = A lot of confusion + A ton of frustration!

Post Edited (Shashi) : 12/2/2006 8:34:42 AM (GMT-7)

Jenny R.
Regular Member

Date Joined Sep 2006
Total Posts : 162
   Posted 12/1/2006 3:42 PM (GMT -6)   
Shashi, my husband tells me the same thing, if they only knew, that these are real feelings, and very annoying.  I have had these randomly for 5-6 years, they have gotten worse in the last 6 months.  Thanks for the reply!!!

Numerously Blessed
New Member

Date Joined Dec 2006
Total Posts : 5
   Posted 12/2/2006 5:25 AM (GMT -6)   


I have no idea if what you both are experiencing is L'hermittes sign or not, but I have had this off and on for 6 years now. 

My L'hermittes, when I am bothered by it, really only happens when I tilt my head down even a little.  I get an almost sickening feeling throughout my body as this "electric shock" goes down my spine and seems to exit out my arms and legs.  Let's just say for the days that I have this, I do not look towards my feet.  And for me, it really does go on for days not minutes or seconds. 

The only time that I have ever buzzed was after IV Steroids.  I felt as if a million bees had decided to take up residency throughout my entire body.

This probably has not helped either one of you, but I wanted to share as this was something else to support my MS diagnosis - this symptom among many other things.

Take care.  I wish that I had some advice to make it stop.


Mommy of two incredible little boys (4&2)
Diagnosed RRMS - February 2000
Tysabri, Provigil 200mg, Lexapro 10mg

New Member

Date Joined Nov 2006
Total Posts : 2
   Posted 12/2/2006 7:53 AM (GMT -6)   
The best place to start is your General Practitioner or Internist.  From there he or she should examine the situation, maybe do some blood tests, maybe refer you to a neurologist to try to get to the route of the problem.
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