My neuro appt today, what she thinks

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jenny R.
Regular Member

Date Joined Sep 2006
Total Posts : 162
   Posted 12/22/2006 3:34 PM (GMT -6)   
Well today I went to the neuro, she asked me all kinds of questions, exmined me and told me that she wanted me to be tested for Lupus, CMV, and EBV.  I stated to her that when this all started back 6 years ago, the only thing that came back positive was a reaactivated EBV virus.  When I told her this, she said, "why didn't you say this in the beginning?"  I told her I didn't think it would have anything to do with my weird sensations, she said that it does because these viruses can attack the nerve cells, she told me that she had 3 people come to her in the last 2 weeks with the same complaints, she put them on high doses of B vitamins, and when they returned, they had almost 100% reduction in their symptoms, I am hoping and praying that this is it. I also told her about my gram being diagnosed with MS at age 60, and thats why I worry about this.  She told me that she doesn't think that my gram had MS at all, maybe vasculitis, or mini strokes, which she did have a few mini strokes.  I have to go next Tuesday to get a bunch of bloodwork done, and go back to see her in Jan sometime.  I hope and pray that this is the cause to my problems, she said that it doesn't sound llike MS to her, but even though my brain and c-spine MRI came back negative doesn't mean that it still can't be MS.  So, she said if I get no relief from these symptoms with the meds she prescribed, then she wants to do the LP.  I feel a little better, but still scared.  It really made me feel good when she said about she didn't think my gram had MS, because this is how I started worrying about all this crap to begin with.  I always said that my gram didn't have the typical symptoms of MS, I wish so bad that she was still alive so that we could have her get further testing, but she's not, and that will just remain a mystery forever.  I am trying to concentrate on better things, and be more positive.   She is sending the hospital a note requesting my films to be sent to her so she can review them.  Thanks everyone for your help, and Merry Christmas!!!!

Regular Member

Date Joined May 2006
Total Posts : 137
   Posted 12/22/2006 4:06 PM (GMT -6)   
Sounds like a great Christmas present to me. It also means you can now
sit back and enjoy the Holidays and not concentrate on what it is or what
it isn't.
Your doctor is moving in the right direction with the right precautions.
Yes, to me it sounds like a great Christmas present. yeah

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 12/22/2006 5:18 PM (GMT -6)   
Indeed those viruses can cause all sorts of neurological problems. That's what doctors are looking for when they do all those blood tests -- those viruses, and other blood-borne diseases that can cause neurological problems. It's good that you remembered to tell her about that (a note for everyone -- you should disclose ALL past illnesses, diseases, test results, etc. to your doctor, when you're searching for the cause of your current illness!)

Your gram had known mini-strokes? It is likely that she did have vasculitis...which again, can cause many neurological problems.

Sounds like your doctor is being very thorough, and hopefully she'll find out what is ailing you, and get you proper treatment.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Jenny R.
Regular Member

Date Joined Sep 2006
Total Posts : 162
   Posted 12/22/2006 6:07 PM (GMT -6)   
Thank you so much for the nice posts.  She told me that she is going to make these weird feelings go away, so, we'll see.  I would say that that is a nice Christmas gift for sure.  I wish all of you a Merry Christmas and a great New Year.  Thanks again, you guys are so supportive, I appreciate all your thoughts and help.  Jen
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 22, 2018 7:59 AM (GMT -6)
There are a total of 2,984,155 posts in 327,189 threads.
View Active Threads

Who's Online
This forum has 161976 registered members. Please welcome our newest member, Mike218.
348 Guest(s), 5 Registered Member(s) are currently online.  Details
WeightLoss, torontolyme, sandyfeet, KC342, iPoop