Posted 12/22/2006 3:34 PM (GMT -6)
Well today I went to the neuro, she asked me all kinds of questions, exmined me and told me that she wanted me to be tested for Lupus, CMV, and EBV. I stated to her that when this all started back 6 years ago, the only thing that came back positive was a reaactivated EBV virus. When I told her this, she said, "why didn't you say this in the beginning?" I told her I didn't think it would have anything to do with my weird sensations, she said that it does because these viruses can attack the nerve cells, she told me that she had 3 people come to her in the last 2 weeks with the same complaints, she put them on high doses of B vitamins, and when they returned, they had almost 100% reduction in their symptoms, I am hoping and praying that this is it. I also told her about my gram being diagnosed with MS at age 60, and thats why I worry about this. She told me that she doesn't think that my gram had MS at all, maybe vasculitis, or mini strokes, which she did have a few mini strokes. I have to go next Tuesday to get a bunch of bloodwork done, and go back to see her in Jan sometime. I hope and pray that this is the cause to my problems, she said that it doesn't sound llike MS to her, but even though my brain and c-spine MRI came back negative doesn't mean that it still can't be MS. So, she said if I get no relief from these symptoms with the meds she prescribed, then she wants to do the LP. I feel a little better, but still scared. It really made me feel good when she said about she didn't think my gram had MS, because this is how I started worrying about all this crap to begin with. I always said that my gram didn't have the typical symptoms of MS, I wish so bad that she was still alive so that we could have her get further testing, but she's not, and that will just remain a mystery forever. I am trying to concentrate on better things, and be more positive. She is sending the hospital a note requesting my films to be sent to her so she can review them. Thanks everyone for your help, and Merry Christmas!!!!