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colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 1/1/2007 9:33 PM (GMT -7)   
Hi all...Happy New Year!!
 
I have my appointment at the Mellen Center on Wednesday. I have waited four monthes for this appointment,so I want to get the most out of it! I am wondering...should I ask for a second opinion...or just accept the dx of MS? I mean...I've had the MRI,have the brain lesions...had the spinal tap...it all says the same answer. But...then I start thinking that maybe,just maybe they could be wrong. Maybe they over looked something,or didnt take something else into account. How many of you have asked for second opinions with your MS dx? I'm just so confused. I guess I want the dx to be wrong...who wouldnt. But am I letting my high hopes get into the way of just accpeted it. I dont know. I mean...what if,just what if it is Lyme disease...or something completly different. But then I think my test results didnt lie. What to do...what to do...
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/2/2007 11:17 AM (GMT -7)   
colee1979 said...
Hi all...Happy New Year!!
 
I have my appointment at the Mellen Center on Wednesday. I have waited four monthes for this appointment,so I want to get the most out of it! I am wondering...should I ask for a second opinion...or just accept the dx of MS? I mean...I've had the MRI,have the brain lesions...had the spinal tap...it all says the same answer. But...then I start thinking that maybe,just maybe they could be wrong. Maybe they over looked something,or didnt take something else into account. How many of you have asked for second opinions with your MS dx? I'm just so confused. I guess I want the dx to be wrong...who wouldnt. But am I letting my high hopes get into the way of just accpeted it. I dont know. I mean...what if,just what if it is Lyme disease...or something completly different. But then I think my test results didnt lie. What to do...what to do...

I'm sorry, I'm confused.... Isn't this a second opinion?  You were diagnosed in August, and now going here? Or is this to establish treatment for your MS?
 
I think second opinions are great if there is any question in a diagnosis..if, for example, some tests have come back "inconclusive", or contrary to what other tests might have shown.  Or if there are other symptoms that don't seem to fit with those pretty well established in a particular disease. And second opinions are useful if you don't trust your current doctor(s), or the medical care you're getting.
 
But I think second opinions..and third, fourth, and so on...can sometimes be a way to avoid the inevitable, a way to keep oneself in denial, when the more prudent course is to accept what is before you, and get treatment.
 
I don't think any of us can (or should) decide this for you. Only you can look at what has happend in your medical care so far, then judge whether you want to pursue another set of exams, or go about getting treatment for your illness now.
 
Good luck with your visit. I hope you get some answers that will be satisfactory for you.
 
 
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 1/2/2007 12:46 PM (GMT -7)   
With going to the Mellen Center,that is the start of my actual treatment. I have felt extremly let down by my current neurologist...so thats why I made the appointment there...lack of trust elsewhere. Thank you for your input.
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/2/2007 6:29 PM (GMT -7)   
Hey Nichole

Just wanted to say best wishes and i hope u get some clear help at u'r appt tomorrow. Please be sure to come let us know how u are and how the appt went. As for the question on the second opinion or not. Well that depends on whether or not u feel u'r dx is correct or somehow u've been misdiagnosed. If u feel confident in the dx, then i'd go with it and persue treatment. The sooner the better on that. By the way, do u have copies of u'r mri films and test results?? If u do, u may want to take those with u if u'r possibly questioning u'r dx. That'd give the new doc some basis to begin with and hopefully forego new testing. Again, best wishes to u and please let us know how it goes!

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/2/2007 7:42 PM (GMT -7)   
Just wanted to wish you luck tomorrow Nicole with whatever you decide to do. We never got a second opinion, we didn't feel it was necessary and felt confident in the neuro that it was the correct dx.   At the very least maybe you can ask some questions to put your mind at ease and go from there.  Best wishes!
 
Kimber
 
Allow Healing Well to continue to help others, clink link for details

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 1/3/2007 11:04 AM (GMT -7)   
Wednesday noon
 
Very good afternoon, Miss Nicole:
 
Just an opinion here...even though you did not ask for my opinion....
 
Are you just hoping against hope against hope that it is not MS?
 
Maybe just time to accept the DX and get on with things?
 
Find yourself a neuro that you like (maybe call state MS Society for refferral).
 
There are meds availqble...support groups available...
 
Great Luck.  John

colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 1/4/2007 5:41 PM (GMT -7)   
Hey everyone-
My appointment went very well...even though that my new neurologist confirmed by looking at my MRI and reading the reports that it is definete. I feel alot more comfortable with having it. My doctor was very nice and very educated with MS. She explained alot and spent about an hour with me...between running her own testing and asking questions,etc. I'm glad I made the switch.
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 1/4/2007 6:41 PM (GMT -7)   
Nichole, I'm so happy you have some definate answers and you like your new Nuero. Is she starting you on any meds?

Hugs
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/4/2007 7:22 PM (GMT -7)   
Your doctor sounds very thorough Nicole and I'm glad you found a doc you feel comfortable with.  It never hurts to ask questions and even better to find a doctor who is willing to explain in depth like she is doing for you :-) Take care and thanks for updating us!
 
Kimber
   
 
Allow Healing Well to continue to help others, clink link for details

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/4/2007 7:39 PM (GMT -7)   
I'm glad you found a doctor you are comfortable with! I think having confidence in your doctor is really important when you're dealing with a chronic illness. I hope you get started on treatment soon, and do well.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 1/8/2007 8:32 AM (GMT -7)   
I am waiting for approval through an assistance program to start taking copaxone...which she said was a very good choice for me. Another confirmation that just helps me feel more relaxed.
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/8/2007 10:04 AM (GMT -7)   
Hey Nichole

Horray for u!!! I'm glad u found a great doc and are on u'r way to starting the Copaxone! Take good care and let us know how that goes!

rhonda

colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 1/9/2007 3:04 PM (GMT -7)   
Oh yeah...I forgot to mention that my new neuro wants another MRI of my brain and one of my spine-which I didnt have before. She wanted to see my spine,any white spots I guess...a "base line". I go to do that Thursday:)
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/9/2007 5:10 PM (GMT -7)   
That's wonderful Nicole, and I'm so glad things are coming together for you.  Please continue on the updates :-)
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
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