Thanks for all the input and so quickly!
I am so glad that I found this forum. I received my diagnosis of RRMS on 22 December. Merry Christmas! Actually it was no surprise and I wanted to know ASAP. Saw the neuro on January 2nd and will start Rebif sometime this week, if all goes well. Anxious about
the shots but I want to get started as well. I'm sure ya'll can understand those mixed feelings. For those of you on meds for other symptoms, such as fatigue and spasticity, did you wait until after starting crabs? do you get these meds from primary or neurologist? My neurologist seems to want to treat only the MS itself and none of the symptoms.
I have found that neuros (and other specialists) kind of "lose interest" in the patient after they make the diagnosis. Sort of like, "...well, I did MY job; I'm a specialist; I figured out what was wrong with this patient...someone else needs to tend to it now..."
Which is why I let my family practioner treat ALL of my health needs, including anything relating to my having MS. It was many years ago that a neuro first prescribed the Betaseron...but now my current family practioner exams me annually, we discuss my MS, talk about any new treatments or medicines either available or "on the horizon" -- and she renews the prescription for Betaseron, talks about relief of spasticity (I'm not on anything right now for that, but I'm due for a physical in February and I'm sure we'll talk then), renews the prescription for oxybutanin (Ditropan -- what I use for bladder control), and so on.
Do you like your primary care physician? If so, I'd talk with her and find out if she's comfortable treating your MS. What happens with me is my primary doctor has access to a neuro. If I have a question she can't answer...or if there is some question about treatment or how to proceed, then she'll call the neuro and consult with him, then get back to me with a course of action. We agreed that if I ever am uncomfortable with her recommendation, or want further treatment, she's quite willing to send me to a neuro for further evaluation. So far, in 9 years now, I've not had any need to do that.
If your primary care doctor is willing, it might be that she'll tak over all your care, and you'd only need to learn how to do the rebif. And maybe, since you're so newly diagnosed, see the neuro several times (quarterly?) this first year, and then less and less. But you should talk with your primary to be sure she's comfortable with this.
Short answer: My primary treats all my symptoms....and monitors and prescribes the Betaseron.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....