Just got the Copaxone today. Its in my refrigerator, as I type, staring me down shapening its needles. I have yet to call the nurse to have them come out and officially "show" me how to do this. I want to make sure I am fully on board before I start so that I'm not unfaithful to this therapy. I hope it hits me soon. In one way I just want to start it and get it over with but its not a one day deal...its for a long time. Right now I just don't see hoe "it becomes a part of your life" as suggested by the materials sent.
How do you adhear to your therapy? What makes you say "yes sir, may I have another?"
Malachy~ I did a lot of research as well and came up with the same conclusion, however there aren't too many people on it yet and it hasn't been out long enough for anything to happen. If I were single and had no family I would do it but its too scary. As suggested by a prior post, I think I will wait a couple of years and see what happens.
Please your positive thoughts...
I think about
the drug injections this way: I have very little control over what MS might do (and has done) to my central nervous system. But the drugs have shown promise that they'll slow the progression and course of the disease --
so anything I can do, large or small, to do that, seems reasonable. If not the Betaseron (like, it didn't seem to be effective for me -- after being on it for a year, to give it time to "work"), then something else that has shown promise.
Injecting the medicine is a proactive act -- I have at least a little bit of control over my life with MS.
To be sure, unlike some other medications for other diseases, it's not a matter of, I have to do it in order to survive -- which is a pretty compelling argument for, say, folks with diabetes who have to inject at least daily, sometimes several times a day, or they're risking their life. I know that I could stop tomorrow and I wouldn't die...but I may suffer increased disability. So I don't take that risk.
Do I inject every time (with Betaseron, that would be every other day). No. I have missed on occasion. Skipped a day. But then start right back up. I know all-to-well the devastation this disease could bring. I want to avoid further destruction, if I can. The drug promises (not assures, but promises) that possibility. So I do it.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....